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It's pretty nasty here today, but not that much of a cleanup. Once it stops raining I'll have to go out and grab the zero gravity chair that blew across the deck and halfway down the yard.
 
It's a cooler day here today - feel like a fall day, not a July summer day. It rained off and on this morning. The sun is trying to peak out every now and again from behind the clouds. It has stopped raining, but there is a cool wind blowing.

How is everyone today? Thinking about those approaching Friday night with the anticipation of a much needed weekend away from work. Thinking about those who don't have the weekend as days off, and are early bed tonight to get up and work in the morning. Thinking of those who are missing family this weekend. Thinking of those who are going through major health struggles and hoping this weekend things will be just a little bit better. Thinking of those who are mourning the loss of loved ones and facing just one more weekend without them. Thinking of those who may be celebrating something wild and wonderful - perhaps an anniversary, a birthday, or a family reunion. Thinking of those who just don't fit into any one of the above categories.

Beloved-daughter has once again joined as at the cottage for the weekend (went in for my massage and picked her up). My massage therapist is a dream! Smart, funny, kind, caring, well-educated, and excellent at what she does. I am so blessed she is a part of my life. I wish I could afford to have a massage once a week LOL!
 
I'm feeling pretty good tonight!
I went to my first ever Zumba class :) This really isn't the best workout for me right now. Maybe it's partially location, I think the floor was pretty hard. Shortly into it, my arches were quite bad off. I actually took a break to cool my feet on the cold floor to prevent swelling and stretch them out :(
I had so much fun though, and my feet aching was probably a good thing, as it's really easy for me to overdo it and not notice until well afterwards. My sore feet made me cheat/mark (thanks dance training for knowing how do this!) a large marjority of the footwork. It was very much high impact, while just shuffling/doing the arms, moving my hips, etc.

I don't know if this will be good for me. I'll give it another go when I can exercise more frequently and maybe with older orthotics.
I overdid it, I had a ton of pain shortly after due to a wisdom tooth. I think this might be HAE related, but an Aleve took care of it instead of starting an IV. All the pain I feel now is related to exercise and not illness. It feels soooo good, as at this point it's minor. Ask me tomorrow :) I also had a (large) glass of wine, which really helps my muscles relax, probably why I'm rambling slightly :)

After determining the province's supervised health exercise programs do not in fact exist at the moment, I have found two offered in association with clinics. (PCN = primary care networks, an association of doctor's clinics, a semi-newish thing here I think. My GP's office is in one mostly outside my area although they are close, they have one, the other is for my area). I'll find out about the one on Monday - I need a referral, and the description is vague and it's more personalized with group and/or individual classes. The second is a specific group program, and is on a break for the summer, but I could start in September.

My current plan is to see what I can do with these PCN programs and do a bit of dance that I used to do. I'd also like to do more Zumba, as well as some of the other classes offered by the company I tried out today, but that will come later.

I hope everyone else is well! @crazyheart I hope a group of people can get a chainsaw or something for the cleanup. Keep the large pieces of wood! At a former house I lived in, the occupants left wood that was from tree(s) cut down in the yard. My parents moved it to their current home and it lasted many years. Good firewood is expensive!
 
Crazyheart, he timed that pick-up run right!

Looks like the storm damage we had a few weeks ago.
I'm still trying to figure out how to post pictures.
 
@Seeler - this is how I did it . . .

go down to the right hand bottom of your screen (right beside "post reply") and hit "upload a file".

you then have to search on your computer where you keep your pictures files and open the one you want to post.

once you do that you will see some activity at the bottom of your screen

the picture will come up and it will ask you "thumbnail" or "full image"

you can hit either one, but Mendalla somewhat suggested "thumbnail" as it takes less "space" (or something like that LOL!)


I am hitting thumbnail on my Lupins pic . . . and it looks like this

Lupins6870.jpg

If someone clicks on the thumbnail as posted above they will see the larger picture.
 
Thanks Beloved. I will try that this afternoon. I'm off to lead worship in two churches this morning. Quite a bit of driving, to and from and in between. But wonderful people.
I'll have some time to work on computer later if I'm not too tired.
 
I have chosen to do nothing this weekend, other than read a novel is two and do some tidying. So far, two novels read while lounging in backyard , a couple of old movies watched, and tidying sorting well underway.

Big plans,eh?

Seeler, hope your sermons were well received
 
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@Seeler you posted elsewhere about a support group. I think something like that would be beneficial to me, but I don't know if one even exists. Do you have any suggestions about finding one?
 
Crazyheart, I just don't know what to search for anymore. I feel really worn out after looking for help with IVs.
 
I don't think every disease has a support group. I would think it would need a significant people with the disease, or involved with them (spouses, caregivers), to form a group - and somebody would have to take the initiative to get it organized.

I know that breast cancer has a group - Seelergirl has chosen not to attend.
Crohns and IBD have a group that we never joined.

I first saw a notice about a Parkinson's group on the bulletin board at my grocery store. I put the number in my pocket and ignored it. The notice kept popping up every now and then. Eventually I went to a fund-raising Breakfast for Parkinsons. There I met other people with the disease who invited me to their next meeting. They actually gave me a phone number and offered to pick me up if I needed a ride. (I didn't). So far I've gone to two meetings and talked to others with my problems, some more advanced than I am, some in the beginning stages, some experiencing different symptoms. I found it helpful to talk to them.

Seelerman went to my second meeting. He met with the other caregivers for small group discussion and found it helpful. I think he'll come with me again in the fall.

I hope that you have good luck finding a group. Perhaps you could talk to your health care people and find out if they know of one. Perhaps they can put you in touch with other people with your health problems. Maybe they have a bulletin board where you could post a notice asking people if they would like someone to talk to - and eventually form your own group.
 
There is a national group, but they don't do anything like support groups, just info nights about 2x/year and that's all over the country. The cancer clinic only deals with cancer is what I find. I'll check out the Red Cross. I don't expect an HAE local group (in 2009 there were 53 'locally' and that included everyone with HAE associated with the clinic, some live in BC/Sask/NWT as well as throughout the province), but I would be fine with a blood disorder, immune disorder, rare disorder, etc. support group. The closest I can seem to find is chronic pain and from what I've seen it's not a great fit.

I had a throat attack today. I'm finding I'm having an issue, this disease really affects my mood at times and when my throat first started to hurt I just didn't care to do anything about it. I put that down to lack of sleep, it was about 4am when I finally fell asleep last night. Now I realize both were probably due to this. Chemguy was out, so I did stuff myself. He actually got home before I had the needle in, but I just carried on doing it myself, including place the tape. No him passing me anything etc. Good to know I can do this on my own completely. I forgot to get the gauze & bandaids packs open - oops! So he did that for me, but if I was by myself I could just grab a tissue and press that to minimize bruising.

I'm feeling much better now. We got prepared to hang out by the hospital, but I felt good enough to stay home. We heated up some leftovers for lunch and sat in the sun for a while. Later we're going to go park near the storm ponds, they were really high on Friday, we want to check them out other than just driving past. Normally we would walk, but I think it's best if we keep the car close today.
 
Seeler said:
Inanna - how old is your father? I read your account of your walk. It sounds like something I would have enjoyed ten years ago. Now I can't do much more than 1/2 klm or so, especially on the up-hill.
Click to expand...
i think we're a young family

(get ready, online stalkers)

my mother reached 66; when she emigrated from Holland, she was around 12 years old
my father is 73
i'm 45
my sister is 42 -- she has three boys, the oldest of whom is 14 now
my brother is 39

my mother has two brothers -- her father died due to an unsolved BC terrorist action -- bomb in his plane. both of her brothers have children, none of those children have spawned yet
my oma reached 88

my father's mom died at a very early age at 58; his bio father abandoned them at an early age; he made it to his late 80's. the father he grew up with made it to 88.

my dad has 4 sisters & 3 brothers. he is the oldest. they have all spawned, some of whom have had spawn of their own

my father has traced his family as far back as Nordic rapes. my mother's family is part Spanish (she's related to the Duke of Alba, the head honcho responsible for the Spanish occupation of Holland--something that we didn't mention in Holland--Europeans have long memories--so that means that I'm part moor! yippie! and that explains why i love ululating)


there you go...part of the Genesis begat chapter of my Tale of the Tribe
 
Perhaps there might be a support group for all persons suffering with an acute incurable illness, ChemGal . . .

Seeler, thanks for sharing your positive experience with your support (Parkinsons) group for both you and Seelerman . . . that is very encouraging.

Pinga - sounds like you had an enjoyable weekend - must have been just what you needed :).

Inanna . . . ``spawn`` - :p - interesting family history!
 
@Beloved this isn't acute, I have looked for some chronic illness stuff, it all seems to be pain related.

@LBmuskoka Sorry to hear about your father. *Hugs* Hope you are able to surround yourself with kind people when you want them around.
 
Support groups do seem to be useful to a lot of people. Small towns usually don't have enough people with any particular disease to have a group. A friend said her small community had a group for 'those living with chronic, degenerative or terminal illnesses' that was working well. They sometimes have a subgroup for the caregivers.
 
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