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ah yes chemgal Energy conservation is needed for you until you are back in the swing of things. Yes avoid the optional activities. As an OT we look at what people NEED to do. what they WANT to do and What is EXPECTED. It's the what is expected that can often be reduced.
Spend some of your energy doing what brings you joy-be that colouring a page, watching a movie or calling your sister.. Take care and this too shall pass.
 
Thanks! It's going to be a tough week, but the week after should be better. I have nothing planned next weekend and I'll keep it that way.

@crazyheart I will say this is still much better than dealing with a bad respiratory infection, that would knock me down just as badly and then there's the symptoms associated with it on top of it. I hope you're getting over pneumonia and regaining your energy.
 
Yes, Tabitha. When I sit -no oxygen -in high 90s. When I exert- it drops to 84 or lower.

Will have another oxygen assessment in December. My doctor would like me on it

all the time. Because I am borderline, we shall see.
 
My mom was around 70% when she was on chemo and finally agreed to go to the hospital because of a nasty flu. Her doctor explained there were corpses in the morgue with more oxygen in them. My mom is not a willing participant in her own health care.
 
You know, given that I have worked for a home O2 company for 18+ years and have created an application for collecting and tracking things like O2 sats and various measures of respiratory health, I remain woefully ignorant of what a lot of it really means clinically. I have a respiratory therapist that works with me on the app design and he provides the "smarts". I just take his ideas and turn them into database fields and workflows and stuff.
 
I'm in a funk. Cocooned with Netflix and jigsaws yesterday.
I am awaiting actions by others. I will get past this funk. Just aware of my mood right now
 
Extremely helpful to be aware of one's own moods. Not a talent enough of us have.

I love leftovers. For a woman who spent a lot of time in her life attending to making meals for people, it's lovely to just say "well, I'll have some more of that tomorrow". I had broiled pork tenderloin, stir-fried swiss chard and some rather amazing scalloped potatoes a second time quite happily tonight, and there's pie for later, too, if I want it.
 
Yup, a diagnosis of cancer for a person that though would not be considered a friend, rather an acquaintance, but, I have much respect for and her husbands. Format of cancer is such that treatment is to slow down, but, recognizing this cancer is one that tends to have people gone quickly. I hope for good days for her.
Another with a reoccurrence of cancer identified at her 5 year appt. she has young children.
Another, a friend, who has had lots of chemo, and is now being treated again. I worry about her, and her circle of friends who care deeply for her.
Another, the sister of my good friend, who was diagnosed and treated at the same time as me....different cancer. She went through treatment . She collapsed last week, admitted to hospital, sent home and prediction is a week.
The extended circle of folks diagnosed with a reoccurrence, being watched, or having friends/family die, including in wondercafe.

I am aware that life is a gift, and am aware that i sometimes squander it.

Our church has had a 10 week sermon series on generosity. I have been particpating in a shorter small group series on generosity at church as well. I am aware of my wants, desires, and needs...and I wonder the lines for each, and what is reasonable.

Then, I have the job that I love, working with peers on security. Driving initiatives, dreaming of futures.....and it is all so corporate. and, it is currently blocked by something outside of my control..or at least at this time it feels outside of my control, though maybe lawyers could help...unclear.
Then, there is my volunteer time, which also consumes time, and is something that I have such hopes for, and my work helps me to be able to support financially....

Then I wonder, why am i doing all this...maybe I should be spending time reading books, doing jigsaw puzzles, walking.

and, ....i swirl, and am in a funk.
 
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I don't like you being in a funk. I like you being in community with us, and with your friends, and I share your fears/inclinations that swing wildly between compassionate care and self care.
 
So many friends and acquaintances with trials right now, Pinga....Your funk is certainly understandable. It's how we preserve ourselves when we care so much.
 
I heard on CBc this morning about an adventure - 80 women affected by breast cancer/ cancer paddled five dragon boats 42 km across Gander lake ( I susspect that is in NFLD somewhere)- some of them just out of the hospital, some post treatment, some in reemission for years. Supposedly, that lake is super deep and not only has weird currents but also sudden winds and fog.
I thought- women who went through cancer treatment are strong to do anything!
 
Pinga said:
I'm in a funk. Cocooned with Netflix and jigsaws yesterday.
I am awaiting actions by others. I will get past this funk. Just aware of my mood right now
Click to expand...
I'm actually getting somewhere. Self-employment is difficult for me. So is regular employment, but in a different way. In regular employment, people remark positively about my work ethic, and negatively about how I deal with people (for example, how it's obvious when I don't like somebody). When I'm self-employed, my work ethic goes downhill, but I think I'm fabulous with clients.
 
oh geez pinga ... that's a lot going on ... definitely worthy of some time of quiet funkiness to settle and regroup, to catch your breath. Cancer seems to be becoming a chronic illness for some ... waxing and waning. Peace will return again.
 
It seems to wax and wane for a few years, in my experience, then, sometimes, come back sharply, quickly, scarily.

But something kills all of us, and I'm starting to see it when talking about "end of life" conditions. What sort of quality of life does one have at 88? Especially if you've "mis-planned" a few things, like transition to retirement residence, food deserts when you lose your license, etc.
 
You know what doesn't help with getting testing done? When the pharmacy doesn't want to give you the medication. Things can never just be simple. Had to make an extra trip today when they refused to give the stuff to my husband yesterday, they wanted to talk to my doctor first. Specialists are rarely in clinics on weekends. I don't see the need for a pharmacist to interfere with the discussion my doctor and I had anyway. Even if so, they couldn't say anything to me when I dropped it off? Or when I get a text at like 7 am stating it's ready?

Then the pharmacist today was grilling me about if I know how to take it, I know the stuff is timed and needs to be taken the night before testing, I know how to swallow pills. Do I know the exact time I need to do it? No, that's why it's written on the bottle for me.
 
Pinga said:
I'm in a funk. Cocooned with Netflix and jigsaws yesterday.
I am awaiting actions by others. I will get past this funk. Just aware of my mood right now
Click to expand...

Pinga, I call a day cocooned with Netflex and jigsaws recharging my batteries. Sad news, worry, stress, can drain energy. We are all entitled to 'me time', time to check out and just let things go for the time being. You say that you are in a funk but this too will pass. Your mood will lift. I think this is the difference between feeling down and clinical depression. I think maybe in a real depression the person doesn't see a way out. With you I'm hopeful that this mood will pass. Perhaps even today your energy is coming back. In the meantime don't feel bad about taking some time to yourself.
 
Pinga said:
Yup, a diagnosis of cancer for a person that though would not be considered a friend, rather an acquaintance, but, I have much respect for and her husbands. Format of cancer is such that treatment is to slow down, but, recognizing this cancer is one that tends to have people gone quickly. I hope for good days for her.
Another with a reoccurrence of cancer identified at her 5 year appt. she has young children.
Another, a friend, who has had lots of chemo, and is now being treated again. I worry about her, and her circle of friends who care deeply for her.
Another, the sister of my good friend, who was diagnosed and treated at the same time as me....different cancer. She went through treatment . She collapsed last week, admitted to hospital, sent home and prediction is a week.
The extended circle of folks diagnosed with a reoccurrence, being watched, or having friends/family die, including in wondercafe.

I am aware that life is a gift, and am aware that i sometimes squander it.
Click to expand...


[FONT=Open Sans, sans-serif]Cancer. I can't believe how my reaction to this word has changed in the past decade.
It changes a person's life -- if not the cancer itself, then the results of the treatment can come back to haunt you.
Seelergirl has passed her seventh year in recovery. Knock on wood, or cross yourself, or point to heaven.
But, in the spring she slipped on black ice in the parking lot at work and broke her wrist - small bone, but it took a long time to heal.[/FONT]
Two weeks ago, just when she was due to go back to work full time after having been on workers comp. she fell while jogging and broke her arm badly - steel plate to reinforce a shattered bone, screws and wires to hold together the other until it heals. And a diagnosis of ostroprosis. At fifty she has the bones of an old woman - a result of the chemo she received.
This is her new reality.
 
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