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I think I need another day or two of pampering. Thanks for all my virtual friends (and my caring Seelergirl) for taking care of me. Today is a day to nap, a bit of light reading, nap, fluids, nap, and an early night. Tomorrow, more of the same.
I'm giving myself until Wednesday to get better.

Does anything require more energy than a sneeze from the diaphram. It exhausts me.
 
Oh Seeler I'm sorry u got nailed with this! I had the flu two weeks ago and it was brutal! No sneezing though. I sneeze a lot - it's genetic - I come from a long line of sneezers and have allergies - it can be very tiring and dizzying! Someone once told me that the velocity at which you sneeze is the same as when you...uhhhh...orgasm (is that tmi?)
 
Spent today at my seminary's preaching conference getting a refresher on doing expository sermons.
 
Do you suppose an integral god would suppose inclusion?

Most self-centred personalities do eliminate concerns that they are emotional about ... even if it is irrational ... and logic is completely out ... as it is biblical ... one is not to know ... thus eliminated from everything out there. Ever wonder where the church patriarchy come up with that storm of conception? Then they say beliefs are isolated from thoughts ... mental process is too magi ... and such witchcraft is not acceptable! Like: where did they drag that up from?

At one time a word was defined in Semite terms as eL lam, or aL leif from the tree of life ... something we should know and experience when travelling down ward ... as the culminating devil would like to account for heavenly fallout ... the cosmological accountant is like that ... whether up or down ...

Isn't that a deviate irrationality settling in as rational?

Perhaps that's just me playing with god ... a game of shuols, or hardshells if you run upon them with your bote in inert "sha" ... the very shadow contained in the Hebrew head ... once known as sha rae, or sa'ra ... a rosey Ute or upright when receiving what she wished ... stray intellect of man's lost DNA? The cosmos appears sec tante ... appearing as manifestation in Greek as Psyche ... a sophisticated complexity for simple phoqah ... just a KISS as limited souls can't absorb in quantity!

Do you know Hebrew phoqah ... Jae ... its a humanist screw-up ... like Jacques ... there lyon under Joan 've Arc ... a flighty dark enclosure? Tis a mystery ... mostly beyond us!
 
Got in to see my hematologist based on a cancellation. They are cracking down on rules with blood products, so that was part of the reason why they got me in earlier - regular doctor visits will be necessary. I have to do more to log now, and forgetting to bring in log sheets is a big deal, in the past if I forgot them one day I could just bring them the next time without it being a major problem.

This appointment was long, I wasn't expecting that for a follow up. Social worker, only 1 nurse this time and the doctor. Was there for over 3 hours.
 
Yes, I was glad to get in now instead of being well behind schedule, especially considering I haven't been feeling as well as I know is possible.

The rules with the meds are a little bit concerning. I've always had to peel a sticker off the medication and put it in my log every time. It's pretty easy to miss that - even the nurses would often toss my bottles in with the sharps before the label was taken off during my training. During an attack, especially in the ER it's even easier to miss and it sounds like they are just going to be more strict about the whole thing.

I don't know how much those who are coming up with these new things are thinking about what we're going through when doing this. I had a good scare last night. Chemguy was out of town and I woke up in the middle of the night, coughing like I was choking on something. I think I just swallowed funny in my sleep, but when I woke up I just assumed I was having an attack, as I didn't get enough of a break to be able to assess sensations when swallowing, etc. When coughing forcefully like that, it's tough to do anything. My brain was going pretty well - no way I could start an IV, did I need an ambulance, how else could I get to the hospital, as talking on the phone wouldn't work to call a cab. Would Chemguy wake up if I called him, as he would at least know what it would mean if I called coughing like that. If I did need an ambulance, should I even attempt to get my medication mixed up so I could get it sooner - would that even be possible.
Filling out my log book, making sure whoever was helping me got that label would not have been on my mind if it came to that!

When I'm going out, I don't usually take the log book with me (it's a binder), carrying a purse & my med bag is enough as it is.

It still beats paying for this stuff :) I just hope they are going to be reasonable with people. I don't think there are many who are careless with this stuff. Still, little mistakes happen. Forgetting to bring the log sheets when going from one appointment to the clinic happens. Or someone goes to school/work and accidentally leaves their binder with work stuff before taking off for the clinic. I'll have to double check before I go every time. There are also sometimes the calls, can you come today instead? Sometimes with only a few hours notice. I might be able to do it, but not always if it means having to go grab the log sheets first.
We'll see how these changes go. It does sound like there will be some advantages, like less waiting when I pick it up.
 
Seeler enters the room and helps herself to a cup of coffee. She coughs into a tissue a few times, wipes the tears from her eyes, and settles down with an afghan. She is feeling better. There is some strength in her voice. Her head is up. Life goes on.

Yesterday was one of those days - it never rains but it pours. Seelerman and I just starting to come back from the near-dead feeling of the flu.
Out in her new home outside of town Seelergirl gets up, makes breakfast, calls the kids for school. Leaves home and drives a klm to meet a work-buddy for carpooling to the next town for work. Gets out of the in the office parking lot, catches her foot on a bit of sidewalk heaved up by the frost. Friend and bystander held her up and into her building. Her boss sends her for xrays.

Meanwhile back home the kids are ready for school. Granddaughter grabs her car keys and swings around for her backpack and bangs her face into the corner of the cupboard. Blood everywhere. Grandson (a cool dude of ten) rushes in to wake his step-father (working second shift this week). First aid - get the bleeding stopped. Check swollen nose, black eyes. Step-father drives Grandson to school. Granddaughter crawls into bed - she'll make up for lost day by studying later.

Afternoon - Granddaughter well enough to go get Grandson from school. Step-father gets ready for work, drives in to hospital and picks up Seelergirl with her bruises looked at and her sprained wrist immobilized. Drops her off at her office to catch her car-pool friend's ride home. He goes to work.

Meanwhile the senior Seelerfolks manage to get dressed and out long enough to pick up a few groceries.

It takes some coordinating to run a family these days.
 
Oh my! It was a bad awful day for the Seeler family!! Glad everyone is home & relatively unscathed.

Those heaved sidewalks are SUCH a danger at this time of year! I also learned that the hard way a few years ago when out walking with a friend. Rolled my ankle on just such a spot & went down fast & hard - concussion & black eye!
 
There are some days when the writing is on the wall, and you should all just roll yourselves up in bubble wrap and spend the day somewhere where there is no where to fall to, like the floor, and hope it doesn't collapse, too.
 
hey ChemGal - seems like "there should be app for that" - a way to just use your phone to take photo of the tag on the bottle (does it have a barcode or something on it?) & record it all electronically. There's a project for you ... you can make your next million $ :-) I suppose they're tracking usage relative to cost; trying to ensure use by the intended user rather than fraud & resale etc.
 
Carolla said:
hey ChemGal - seems like "there should be app for that" - a way to just use your phone to take photo of the tag on the bottle (does it have a barcode or something on it?) & record it all electronically. There's a project for you ... you can make your next million $ :) I suppose they're tracking usage relative to cost; trying to ensure use by the intended user rather than fraud & resale etc.
Click to expand...
That's a great idea Carolla.
 
Carolla said:
hey ChemGal - seems like "there should be app for that" - a way to just use your phone to take photo of the tag on the bottle (does it have a barcode or something on it?) & record it all electronically. There's a project for you ... you can make your next million $ :) I suppose they're tracking usage relative to cost; trying to ensure use by the intended user rather than fraud & resale etc.
Click to expand...
It's the lot number. The log is probably used for what you're suggesting, as well as patient care. For example, on it I have to put the date, the reason for using it, if it's an attack where & how severe, trigger factors, and any adverse reactions. Some of the changes are also good - like now there's a space to put number of vials, so now I don't need to be thinking about when it's time to order more. If any is wasted, I also need to record that and why.
I think it will be a ways off before they allow us to use an app. Sending a picture of the log might be possible.
 
I forgot to mention, I met someone else with HAE for the first time yesterday. We were both in the 'waiting hallway' at the same time. You start in a waiting room, but between the different people you meet with there's random chairs in the hallways.
 
Good morning everyone!

I've been away (only from Wondercafe2, not home :)) for a few days, and I haven't caught up on all the happenings, but am thinking about the lives of the "roomies" here.

Will try and go back and read what I have missed . . . but sometimes that is daunting and I don't get it done - perhaps maybe I can scan, cause I really do care what is happening with everyone.

Will have to check out the rest of the threads to see what is happening.

Signs of spring here . . . a bit of melting of snow on the roadways, so a few puddles now. It is supposed to be "spring-like" weather here the next few days, so I'm sure it will start to get quite "wet".

Working on church stuff (Annual Meeting on the 22nd), and doing some organizing here at home. I organized and saved (On USBs and DVD's) all my photographs and documents on my computers. I've lived through two computer crashes and hate it when I loose information and pics, so I thought I'd better get at it. I have literally thousands upon thousands of photographs, so I went through and edited and kept only those that I really want (although I'm not a pro, nor really good at it, photograph is my hobby and with a digital camera I can take many, many, many pics (especially birds, flowers, rocks, trees, lakes, etc.) in a year. It took a long time to edit and then to save. But it is done - YAY! Now I need to keep it up every month.

I still have to edit my documents . . . but at least they are saved somewhere off the computer.

How is everyone?
 
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