Room For All

Welcome to Wondercafe2!

A community where we discuss, share, and have some fun together. Join today and become a part of it!

Register Log in
My IV friend is gone. I went through a pretty bad 15 minutes - attack pain increasing, infiltration of IV, removing all the tape for the IV, needing to get an IV started, dizziness, nausea, plus really needing the bathroom.
The pain that had built up in my face is slowly dissipating now though, it is nice to have full movement of my arm and I'm going to sit in a soaker tub for a while without worries about my IV site getting wet. I also don't need to worry about seeking treatment for opiate constipation, so that's a plus.

I might ask for another line, especially since we have the supplies now. I'll leave that decision until tomorrow though. We can see what my surgeon's office can do (I'm assuming the earliest would be monday, but hopefully I can get the info tomorrow) or else it's the ER.
 
Oh dear -your health situation sounds so terribly complex and HARD Chemgal. I'm awed by your ability to keep track of it all. Quite frankly I would be tempted to send a registered letter to the health department head honcho expressing my dismay that my life and well being is being threatened by health employees who don't know what they are doing! They really ought to have a plan of action for special needs patients like you.

Chansen - congratulations on your super special news. I confess - I've been dreaming of a WonderBaby! Hope you keep us as updated as your family feel comfortable with. (Not just the future WonderCitizen but also the job).
 
Chansen, smiles for you. There are some people who go through life never realizing the fragility of life and children. For the others, parenting is never the same. May you be able to relish and celebrate this child with all the joy possible, and may the times of crushing awareness of its fragility be manageable.
 
Kay, I will be doing something for sure. I'll need some time and info like medical records to help me figure it out. I actually contacted a MLA candidate regarding health care before casting my vote, so he may be a starting place depending on the results on the 5th.

While some things are directly due to individuals, there are also issues with the entire system. I am not alone when it comes to problems with complex care.
 
Tabitha said:
I wonder if the hospital social worker would be a way to start.
Click to expand...
Thanks Tabitha, that's really helpful. As this was at a different hospital and didn't really even involve that clinic much other than to get the orders I had forgotten about her. Mind is still a bit mushy too. She only works a few days a week - I think earlier in the week. Hopefully I can contact her tomorrow, even if I'm still a bit out of it. She will likely be a great starting place for how to get records, who to start with when it comes to complaints, etc.
 
chansen said:
I can't get them into Canada. I had to have them shipped to a PO box in the States, and drive them across. It was Bond-esque.

Can I maybe cheer you up with a bit of good news? My wife is pregnant. Four months along.

Shhhhh.
Click to expand...

Good News Chansen!
 
Gorgeous day here! And since church was cancelled this morning (Marathon weekend - so we had worship Thurs evening instead) my mate & I went off to the arboretum at the Royal Botanical Gardens for a hike in the woods. Saw lots of birds, waterfowl, a deer, red squirrel, turtles, snakes, and the frogs were voiciferous! The eagle's nest was empty unfortunately - would have been a treat to see them with chicks! Lots of beautiful wildflowers blooming (I have to get out my book because I saw some I don't recognize) and the first trillium of the year are out :-) Then we walked up through the magnolia dell - WOW! It was glorious - all the star magnolias are blooming, and the saucer magnolias are just beginning to open some buds. The scent in the air was heavenly. Stopped in at the main pavillion & had a great lunch at the cafe, did some early Xmas shopping in the gift shop. So a thoroughly delightful day with my sweetie.
 
Carolla said:
Gorgeous day here! And since church was cancelled this morning (Marathon weekend - so we had worship Thurs evening instead) my mate & I went off to the arboretum at the Royal Botanical Gardens for a hike in the woods. Saw lots of birds, waterfowl, a deer, red squirrel, turtles, snakes, and the frogs were voiciferous! The eagle's nest was empty unfortunately - would have been a treat to see them with chicks! Lots of beautiful wildflowers blooming (I have to get out my book because I saw some I don't recognize) and the first trillium of the year are out :) Then we walked up through the magnolia dell - WOW! It was glorious - all the star magnolias are blooming, and the saucer magnolias are just beginning to open some buds. The scent in the air was heavenly. Stopped in at the main pavillion & had a great lunch at the cafe, did some early Xmas shopping in the gift shop. So a thoroughly delightful day with my sweetie.
Click to expand...
What a magnificent walk Carolla. Sounds thoroughly enjoyable. I love outdoor walking, and gift shops.
 
Beautiful day here in Ottawa. I went to half our service at church today and then my brain couldn't take it any longer and I fled. The reflection was about spring and better moods and involved a meditation about what God would say you would need if you were a plant and my brain twisted that around pretty badly. Next weekend is the walk for women's mental health and I am (gulp) walking (a slow) 5km.

@ChemGal keep on hanging in. I hope you get some relief soon. I like the idea of talking to the social worker - and maybe s/he will have some ideas on how you can get your care better coordinated.

My health is not as precarious as yours but the weekend before last three medication mistakes were made on me. I also asked for my day to be charted and was told the nurse was too busy that I could do it myself. So I wrote a letter to the person who I thought was the director of care who referred me to the manager (who has never once said hello to me in the ten years I have been an inpatient) who said she would schedule a meeting with me to discuss my concerns (another patient had been the subject of abject neglect and I wanted it documented) and she has never scheduled the meeting and I don't expect that she will. It's been almost two years since I have been an inpatient and the care has declined a shocking amount. My concerns were also forwarded to a client representative type and I've heard nothing but crickets from her. My emails were polite and factual - no accusations. My patient neighbour was an older woman who was delusional and at times argumentative and the staff had no idea how to handle her - they left her lying face down on the hall floor, half-clothed one evening while she screamed that she was about to be burned to death :( it was heartbreaking. (The solution was to move me when a room became available, but I understand that she has now been transferred).

Torradol is what they gave my Uncle - apparently it has fewer side effects for the very aged (unlike actual narcotics).
 
We had a wonderful Church service today - giving praise and glory to God, celebrating the ordinance of communion, and learning more about the sufferings of old Job.
 
Meds are so important. I am aware of a senior who was quite precarious before a geriatric nurse reviewed his meds and initiated corrective action.

Justme, i often find it is easier to go laterally if someone doesn't respond or do a sip level referring to the lack of response
 
[QUOTE="Pinga, post: 55590, member: 4"

Justme, i often find it is easier to go laterally if someone doesn't respond or do a sip level referring to the lack of response[/QUOTE]

What's a sip level? I went to the director of care because we had a previous relationship but she has moved on but there is no one else to follow-up with and I worry about repercussions if I get "louder". It's kinda scary though and I will be more careful with meds now.
 
@Justme - while it got to be too much, I hope the service was also helpful to you in some way. A walk sounds nice, and there is nothing wrong with achieving a 1k or 3k or some other distance - as long as their is some type of pickup option at those points!

I hope you get somewhere with the care issues. It's incredibly frustrating! We are both quite aware of what's happening, you know the problems have to be there, likely worse, for those who are more awareness impaired.
 
KayTheCurler said:
I was going to ask the same question CH. Another question would be - does everyone in that congregation know what it is?
Click to expand...

Everyone who attends regularly would. We observe the ordinance on the first Sunday of each month. Each time we do so, the pastor (or whomever is leading should the pastor be away) explains that the elements are merely symbols - that no special grace is being given us through our partaking.
 
You must log in or register to reply here.
Back
Top