Seeler's complaints

[ChemGal]

@Seeler been thinking about making a post on pallative care, will probably do so later.
I was wondering if that's something you have considered getting set up? There's a bit of a stereotype that it's the same as hospice care I tend to have that connection too strong in my mind even though I know otherwise. Hospice is only one type of pallative care though, there are other forms that are intended for much longer term care, with things added or removed as needed. Parkinson's is often one of the examples of conditions used when it comes to non-hospice pallative care that can be quite beneficial.

 

[Mrs.Anteater]

@Seeler been thinking about making a post on pallative care, will probably do so later.
I was wondering if that's something you have considered getting set up? There's a bit of a stereotype that it's the same as hospice care I tend to have that connection too strong in my mind even though I know otherwise. Hospice is only one type of pallative care though, there are other forms that are intended for much longer term care, with things added or removed as needed. Parkinson's is often one of the examples of conditions used when it comes to non-hospice pallative care that can be quite beneficial.

Not sure how it is in NB, but in NS, you can only be on the palliative care caseload if you have a health condition which makes it very likely for you to die within 6-12 months, which, thankfully, I don’t see happening to Seeler.

 

[ChemGal]

Not sure how it is in NB, but in NS, you can only be on the palliative care caseload if you have a health condition which makes it very likely for you to die within 6-12 months, which, thankfully, I don’t see happening to Seeler.

That's really unfortunate. That's more related to hospice type care. Some people even end up off of pallative care because they recover (although in general, it's meant for those where recovering is unlikely, but medical advances do happen).

 

[ChemGal]

ugh and I typoed that every time - not going to go through and change that every time.

 

[Mendalla]

Not sure how it is in NB, but in NS, you can only be on the palliative care caseload if you have a health condition which makes it very likely for you to die within 6-12 months

I know in Ontario, palliative home oxygen funding is only 90 days but has no medical criteria beyond a doctor saying you're likely to pass in that time. If you're still alive after that, you have to qualify for chronic funding, which requires certain blood oxygen levels. Not sure about other palliative home care services, though.

 

[KayTheCurler]

Seeler I'm glad you are able to take up your fun activities again this fall. Social events are so very important to keep us going.

I read your words about the support group with great sadness. It sounds like the new facilitator as a totally different idea of 'support' than the previous one. Would it help any to write her a letter or email explaining your thoughts and feelings?

 

[KayTheCurler]

I too love that expression "tyranny of positivity' and have met people whose positivity is repulsive to me!

I shudder when I recall remarks from the 'be positive' crowd that totally negated my honest, and deserved feelings.

 

[Sarah]

Seeler, you have been my rock as I worked through Morley' s Parkinsons. I have never said Thank You.

Blessings to you and your family.

I come back here to remember her. Ugh it’s like I can hear her voice. She seriously was the best.

 

[Northwind]

I come back here to remember her. Ugh it’s like I can hear her voice. She seriously was the best.

I miss CH in here. She was a special woman.

 

[BetteTheRed]

I miss CH in here. She was a special woman.

She was. So seriously "hospitable" in the best sense of the word. She really liked my son, and then we had such a super overnight visit on the way back. And man, did those eyes sparkle behind those funky glasses!

 

[Carolla]

@BetteTheRed - I remember her funky glasses and colourful clothing too from when we had lunch with CrazyHeart, one of her dtrs, and Mr & Mrs Naman. There was no shortage of laughter & caring conversation. Thanks for dropping by periodically @Sarah - glad this place holds good memories for you - she was 'the best'.