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It was ? 7? years ago, I am thinking now. There was a lot of frustration within the family due to her choices re her meds, due to nursing. It was a sad time.
 
Pinga said:
It was ? 7? years ago, I am thinking now. There was a lot of frustration within the family due to her choices re her meds, due to nursing. It was a sad time.
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I'm happy to stay out of that mess. Were the meds known to cause an issue with breastfeeding?

Some of the recommendations get a bit silly just because it's not ethical to test. Like those on prophylactic treatment with the various forms of c1-inhibitor is generally a no for pregnancy/breastfeeding. Umm, it's in the body anyway! None of the additives are an issue. Even with attacks it starts to become a how serious is it. Attacks can also be harmful to the fetus, depending on the location so it becomes one big mess.
Lucky ones do better while pregnant though. Birth is a big trigger though, so does one treat during labour for a better outcome or wait it out.
 
Jae - thanks for your explanation about night time seizures. It was an interesting read.

There seem to be various causes of seizures - some existing in childhood, others showing up later. We have an adult kid who started getting seizures following a serious brain injury. He was put on two types of medication while still in ICU. Much later a decision was made by his neurology team to have him slowly stop taking them. Weaning from the first was trouble free. Stopping the second one went well until the day he took no seizure medication at all . That was yet another day when we almost lost our boy. Fortunately he started to seize in front of other adults and the ambulance didn't take long to get there. At one point there were three doctors, two emergency responders, four nurses, and two parents in the room trying to hold him still enough to get corrective medication into his system. It was fortunate that one of the doctors knew what medication he had been weaning himself off, so they had good success in starting to get the situation under control.

A daughter had a friend die when she had a seizure when home alone. Her seizures had been completely under control for about five years. A friends spouse had a seizure, fell downstairs and broke his neck. It isn't a simple problem.
 
Heard of another HAE death. He was 25. Sounds like he had similarities to mine, with minor throat swells that he didn't medicate in the past.
He had no meds at home. Figured it was a minor swell, watched it, felt no progression after and hour and then went to bed. He did wake up when it got serious, paramedics came, intubated in hospital, it was too late.
 
so scary, ChemGal. I am thankful that you are on top of this one, with meds and caring. I am aware that illness which requires personal care is much easier if you have the mental capability to do so. I think of just my own treatments, relatively simple, but, some people would have trouble navigating the diet and appointments and travel and health impact. They would be popping pills for symptoms, which would cause other symptoms and be a mess. I think of seniors and the burden on their bodies.
 
Wow - sometimes this thread gets busy. I asked Jae a question and a page and a half fills up before I get back to read his response. Thank you Jae for the good information and the discussion it generated. As I said, I'm not very knowledgable about seizures. Many years ago I had a friend who had frequent petit mal - he would be in the middle of a conversation when suddenly he would stop talking, stare into space momentarily, then blink or shake his head and ask 'where were we?' and continue the conversation as though nothing had happened. But if there were several incidents in a short period he would have to excuse himself and go home. He also had grand mal where he would fall down shaking uncontrollably. We would clear the area around him, cover him with a blanket or coat, and observe him. Usually within a minute or two he would stop seizing. Only once do I remember it lasting more than a couple of minutes and we took him to emeergency. It was many years ago. I moved to a different city and lost track of that group of friends.
Somewhere in the back of my mind I think I knew that people could die from seizures but I thought it was probably when they fell and hit their head or fell downstairs or into a campfire, or stumbled into traffic - or choked.
 
Peculiarities of the neural tissues as mysterious and yet there are people that say there is no power to this mental state ... that they are aware of ... thus psychosomatics ... the study of what we are not alert to ... some authorities would conspire to keep us in the dark .... metaphorically ... if we didn't know what they were plotting to tip the balance ... what could they get away with?

Considering the existence of the unconscious mind looking on ... would someone out-of-it reflect on the matter of dark energy of the soul later, or would you just not know if the mind was abused and misused ... and thus a lost soul?

Is pure science observation without care ... another conspiracy that scientists would use to oppress cares?
 
Baby TNO is busy right now kicking mom's kidneys. The wife says this is the most active of the 3 so far, which has us both scared. Though, to be fair, Claire kicked more than Carter, and the crazy active one between them was Carter, so who knows. If the kid comes out with the ability to run and kick 30 yard field goals, we're doomed.

Her OB wants her to record the kicks over a 2 hour period, looking for 6 kicks minimum. That count is eclipsed in an average of 30 seconds. TNO is mad and wants out.
 
By the time we got to our last, it was considered a high risk pregnancy. My OB was determined we would have a healthy live baby, and so , I was monitored highly. I would have to go for the kick tests to ensure this wee one was moving well. If the baby didn't move, they would give me orange juice. I remember one time when the nurses were panicing, and called her. They came back to quote her: "have you seen how short that woman is and how big her belly is, the baby has no room , give it time". I'm 5'4". A few days later, I gave birth by c-section to an 11lb 2oz healthy baby boy.

I get the checking in of your OB. I hope that all goes well.
 
chansen said:
TNO is mad and wants out.
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I think it's more like -
"Oh boy, oh boy ... I can't wait to meet my family in person! Their voices sound awesome so far ... and I can't wait to get out, come on mom ... open up!!. I wonder if my dad has any hair? I hear he likes to build stuff - so I'm practicing hammering & kicking stuff, and cursing so I can help him. Woo hoo!! Big day is coming!!"
 
KayTheCurler said:
Jae - thanks for your explanation about night time seizures. It was an interesting read.
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You're welcome Kay :)

KayTheCurler said:
There seem to be various causes of seizures - some existing in childhood, others showing up later.
Click to expand...

Yep, mine started when I was 14.

KayTheCurler said:
We have an adult kid who started getting seizures following a serious brain injury. He was put on two types of medication while still in ICU. Much later a decision was made by his neurology team to have him slowly stop taking them. Weaning from the first was trouble free. Stopping the second one went well until the day he took no seizure medication at all . That was yet another day when we almost lost our boy. Fortunately he started to seize in front of other adults and the ambulance didn't take long to get there. At one point there were three doctors, two emergency responders, four nurses, and two parents in the room trying to hold him still enough to get corrective medication into his system. It was fortunate that one of the doctors knew what medication he had been weaning himself off, so they had good success in starting to get the situation under control.
Click to expand...

Wow. I'm glad they did get it under control. I hope your son is doing well now.

KayTheCurler said:
A daughter had a friend die when she had a seizure when home alone. Her seizures had been completely under control for about five years. A friends spouse had a seizure, fell downstairs and broke his neck. It isn't a simple problem.
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Yes, not a simple problem at all.
 
Seeler said:
Thank you Jae for the good information and the discussion it generated.
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You're welcome Seeler. :)

Seeler said:
As I said, I'm not very knowledgable about seizures. Many years ago I had a friend who had frequent petit mal - he would be in the middle of a conversation when suddenly he would stop talking, stare into space momentarily, then blink or shake his head and ask 'where were we?' and continue the conversation as though nothing had happened. But if there were several incidents in a short period he would have to excuse himself and go home. He also had grand mal where he would fall down shaking uncontrollably. We would clear the area around him, cover him with a blanket or coat, and observe him. Usually within a minute or two he would stop seizing. Only once do I remember it lasting more than a couple of minutes and we took him to emeergency. It was many years ago. I moved to a different city and lost track of that group of friends.
Click to expand...

It sounds like your friend knew what to do when his seizures hit him. He had probably had seizures for quite some time. I know when I started having seizures I would become terrified when I got my aura (the feeling that a seizure is coming on). Nowadays, I'm much calmer - because I know pretty much what I'll experience. I talk myself through it. It's okay... it'll be fine... God is with me...

Seeler said:
Somewhere in the back of my mind I think I knew that people could die from seizures but I thought it was probably when they fell and hit their head or fell downstairs or into a campfire, or stumbled into traffic - or choked.
Click to expand...

Hitting one's head is probably the biggest cause of death. It's something which I've thankfully never done. I have chewed about 1/4 of my tongue off one time - all around the outer edge.
 
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