Room For All

[Jaebius]

Wow. Fascinating what different ideas of a 'great sleep' we have. I sleep almost every night for eight hours without waking, and consider anything less a 'bad night'...

I sleep about seven - and wake up 1-3 times a night. What I consider a 'bad night' is when I have a seizure as I sleep. Not as bad as having a seizure when half-asleep, or when having just awoken - but still.

 

[revjohn]

I credit scouting for my ability to fall asleep anywhere, anytime. Generally manage to sleep long enough and well enough to be refreshed. Only time I have ever had trouble sleeping was after I tore my meniscus (but before we clued into the fact that the meniscus was torn.

 

[Tabitha]

I awake in the night a time or 2. Nightime washroom trips are not needed. Sometimes because the cat nudges me. I use the radio -set for 90 minutes to get back to sleep. Without housemates it doesn't bother anyone.

 

[Greywolf336]

Listening to the radio yesterday they had an interview with a wardrobe consoltant and personal shopper about the "must have's" for fall this year. Of her list of I think six items I own/want to own NONE of them, some because they were dresses/skirts and I wear neither and some because I could NOT see them looking good on my body shape.

 

[Jaebius]

If the radio is playing, I cannot sleep well. I require total silence and total darkness. My yobo, on the other hand, likes keeping the bathroom light on. Ah, it's a small price to pay to be married to one so radiant.

 

[Pinga]

One of the side effects of pelvic radiation in cystitis (bladder inflammation). In order to reduce impact , we drink a lot of water. The cystitis causes me to need to go to the washroom frequently, etc. It is relatively minor right now, so...i am aware of what is causing it, and doing everything to slow the progression.

 

[Seeler]

I sleep about seven - and wake up 1-3 times a night. What I consider a 'bad night' is when I have a seizure as I sleep. Not as bad as having a seizure when half-asleep, or when having just awoken - but still.

Jae, forgive me if this is something I shouldn't ask, but I realize that I know little about seizures and I didn't know that you could have a seizure while you sleep. (My tremor sometimes prevents me from falling asleep but I've been told that once someone with parkinsons falls asleep the tremor stops - it's a way Seelerman can tell if I'm sleeping or just lying still waiting for morning.)
How do you know if you have a seizure as you sleep? Does it wake you up? Or does your wife wake you? Or does she tell you in the morning?
If you have a seizure during your sleep does it affect you the next day?

 

[ChemGal]

Jae, forgive me if this is something I shouldn't ask, but I realize that I know little about seizures and I didn't know that you could have a seizure while you sleep. (My tremor sometimes prevents me from falling asleep but I've been told that once someone with parkinsons falls asleep the tremor stops - it's a way Seelerman can tell if I'm sleeping or just lying still waiting for morning.)
How do you know if you have a seizure as you sleep? Does it wake you up? Or does your wife wake you? Or does she tell you in the morning?
If you have a seizure during your sleep does it affect you the next day?

I'm curious too. I knew you could have them while asleep. But what allows you to know?

 

[Jaebius]

Jae, forgive me if this is something I shouldn't ask, but I realize that I know little about seizures and I didn't know that you could have a seizure while you sleep.

A good number of seizures have occurred while I was sleeping. Indeed Seeler, I think all of my first ones were. The first time I had a seizure my parents were startled and hurried into the bedroom of my brother Dr. Rae and I to find me sleeping but shaking.

(My tremor sometimes prevents me from falling asleep but I've been told that once someone with parkinsons falls asleep the tremor stops - it's a way Seelerman can tell if I'm sleeping or just lying still waiting for morning.)

Interesting.

How do you know if you have a seizure as you sleep?

Hm, good question. If I sleep all the way through it, I don't know in terms of feeling anything - I just find out later when I awaken with a headache, and someone fills me in on what has happened. Sometimes though, I have woken up during a petit-mal seizure, and have felt its effects.

Does it wake you up?

I've woken up during them, but I can't say with certainty that my awakening was caused by them.

Or does your wife wake you?

Surprisingly, in the (almost) eight years we've been married, my yobo has never seen me having a seizure. Most recently we've been on different time schedules, with her working nights and me days - so any seizures I've had have been before she's arrived back home.

Or does she tell you in the morning?

I suppose she will

If you have a seizure during your sleep does it affect you the next day?

Yes - seizures always affect me in a couple of ways - I get a headache, and become fatigued. After a grand mal seizure (which thankfully I don't experience very often) I will have a pounding headache, and basically be tired to the point of wanting to sleep all day.

Thank you for your questions Seeler. Here's a link to more information about nocturnal seizures -
https://www.epilepsy.org.au/about-epilepsy/understanding-epilepsy/nocturnal-seizures-during-sleep

 

[ChemGal]

Thanks for explaining Jae!

 

[Mendalla]

If the radio is playing, I cannot sleep well. I require total silence and total darkness. My yobo, on the other hand, likes keeping the bathroom light on. Ah, it's a small price to pay to be married to one so radiant.

My wife and I are on different clocks so fortunately, I can sleep with some light and noise (in fact, music sometimes helps when I'm having an attack of insomnia). She wakes late in the morning and reads late into the night. I'm up by 7 and often in bed by 10:30, 11 at the latest. So I often have to go to sleep with her reading light on. I also used to have the radio on "sleep" mode when going to sleep but her presence has kind of ended that practice since I don't really want to sleep with ear buds in.

 

[Pinga]

The sister of a friend of mine died during the night due to an epileptic seizure. She had been off her meds due to the recent birth of her second child. The baby had woken up, and when put back to bed, the toddler was awoken. Dad settled in with the toddler to get it back to sleep, and fell asleep himself. Mom had a seizure some time in the night, and was found in the morning by the Dad.

Very sad. Very hard for the family and the new Dad.

 

[Carolla]

The sister of a friend of mine died during the night due to an epileptic seizure. She had been off her meds due to the recent birth of her second child. The baby had woken up, and when put back to bed, the toddler was awoken. Dad settled in with the toddler to get it back to sleep, and fell asleep himself. Mom had a seizure some time in the night, and was found in the morning by the Dad.

Very sad. Very hard for the family and the new Dad.

how very sad pinga.

 

[Jaebius]

Thanks for explaining Jae!

Happy to ChemGal

 

[ChemGal]

The sister of a friend of mine died during the night due to an epileptic seizure. She had been off her meds due to the recent birth of her second child. The baby had woken up, and when put back to bed, the toddler was awoken. Dad settled in with the toddler to get it back to sleep, and fell asleep himself. Mom had a seizure some time in the night, and was found in the morning by the Dad.

Very sad. Very hard for the family and the new Dad.

That is really sad. I've been considering getting something with an alarm that measures oxygen. I've heard of an another instance recently where someone had a bad throat swell in their sleep without waking up. Good results this time thanks to a dog and 9-11 being called.

Before hearing these things I figured I would wake before it got bad. I do wake up in the morning with mild throat attacks frequently, even years ago before things were bad it was a regular occurrence.

A service dog would actually be even better, as they can actually predict attacks. That, or technology that senses the chemical change but I haven't heard of anything in the works that way.

 

[Pinga]

That is really sad. I've been considering getting something with an alarm that measures oxygen. I've heard of an another instance recently where someone had a bad throat swell in their sleep without waking up. Good results this time thanks to a dog and 9-11 being called.

Before hearing these things I figured I would wake before it got bad. I do wake up in the morning with mild throat attacks frequently, even years ago before things were bad it was a regular occurrence.

Are there dogs that can be trained for your symptoms, ChemGal?

 

[Jaebius]

My wife and I are on different clocks so fortunately, I can sleep with some light and noise (in fact, music sometimes helps when I'm having an attack of insomnia). She wakes late in the morning and reads late into the night. I'm up by 7 and often in bed by 10:30, 11 at the latest. So I often have to go to sleep with her reading light on. I also used to have the radio on "sleep" mode when going to sleep but her presence has kind of ended that practice since I don't really want to sleep with ear buds in.

It sounds like our home - with some people still awake at the time others are going to sleep. My middle son has recently taken to showering at around 11pm, while I like to go to bed around 10pm. My wife and I have until recently been on different shifts, so I more-or-less have had things quiet and dark. It will be interesting to see what changes as she transitions into her new career as a store owner. Some mornings she will have to get up around 4am - to go to auctions.

 

[Jaebius]

The sister of a friend of mine died during the night due to an epileptic seizure. She had been off her meds due to the recent birth of her second child. The baby had woken up, and when put back to bed, the toddler was awoken. Dad settled in with the toddler to get it back to sleep, and fell asleep himself. Mom had a seizure some time in the night, and was found in the morning by the Dad.

Very sad. Very hard for the family and the new Dad.

So sorry to hear Pinga, that is so very sad.

 

[ChemGal]

Are there dogs that can be trained for your symptoms, ChemGal?

They can be. There is nothing in Canada for this service. In the US from what I have seen there isn't a company that just sells the dogs. People work on training there own and then they work with a company to get them certified.

Never having a dog before, it's not something I think I could do easily.

 

[Tabitha]

That is a sad story Pinga. It did happen at night but I expect the same would have happened in daytime. Dad heads back to work. Mom baby and toddler are at home...We tend to forget (or at least I do) that seizures can be fatal. Much more common are ones that stop on their on or with medical intervention... My condolences to the family.