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Depression in that peculiar neurological order of Parkinsons takes on a whole different appearance than what we commonly think of depression. Dealt with it with my step-father and with a good friend (recently diagnosed)! Sort of like the depression of growing older and wiser and noticing what you are not capable of any more due to natural degradation ... instead of degradation of mankind ... that tries to tell you what is impossible ... though you may, when younger, still be capable.

Such negative concepts of putting capabilities down can limit society ... but authorities can't see it ... sort of too Pragmatic!

Authorities also tend to be obsessed with youth ... they do a lot of reconstructive surgery ...
 
Thank you all for your positive responses. I really don't think I'm depressed (at least not clinically depressed) - I'm saddened by the limitations this condition places upon my body, but I think that is a normal reaction.
I agree with Luce NDs definition - gleaned from his experience - relating it to aging.
 
chemgal, would be interesting to know if the procedures are for all people (ie, what other treatments have to have it. Is it possible that some of the meds go to people who are high risk for illegal drug use? It may be a procedure re-alignment and maybe a letter to policy makers would be in order.


Seeler, I was trying to figure out how to phrase. I think you have been intermittently down regarding aging, friends, and the limitations, or fear of the limitations of your illness. Yet, that is what this site is about, to share your fears. So, I have no idea if that is how you are all the time, or just that is what you share here. My feelign is based on your posts on other areas, your trip to family, etc, that you are not down all the time, but, rather just helping us understand the fears that sometimes haunt, in order to both help us, and help yourself. Only you, your family,and your doctor would know if it was more serious than that, but, to me, you seem just concerned, as we all get.
 
Pinga said:
chemgal, would be interesting to know if the procedures are for all people (ie, what other treatments have to have it. Is it possible that some of the meds go to people who are high risk for illegal drug use? It may be a procedure re-alignment and maybe a letter to policy makers would be in order.
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No, these are all things from CBS. The most common would be IVIG/SCIG for those who have immunodeficiencies in the typical sense, but many people actually have that done in a clinic. Next would be clotting factors for bleeding disorders. I don't know if the clinic does anything beyond that, I think there are a few other blood product medications that people would use on a regular basis, but I don't know if they can even be self-infused or if they need to be done somewhere for medical observation. I haven't heard of anything else and the nurses are friendly, chatty people.

The concerns would be - people selling the actual medication, as these are expensive things. At the very low end of cost in the US (weird US insurance discounts, all the insurance companies get it for a different price - other countries vary significantly) my pickup yesterday would be a bit beyond $100,000. The logs would make this difficult to do. Ditto for sharing it with family members who live in other countries.
The much likelier issue is people sending/selling supplies to people in other countries. I suppose the needles and disinfectants could go to illegal injection drug users here, but the syringes are too big, needles and the related supplies can be obtained for free from needle exchanges. It's really no different than people who get diabetic supplies from free due to insurance - private or provincial. Diabetic supplies would actually be more recognizable to those illegally injecting drugs.
 
I think that I mentioned that I got my car detailed from a christmas present from my kids. What a great job was done. Spotless, shining in the sun, smells good. Thrilled.

This morning, I left the hospital to find, a bird had pooped on the hood, a great big blue blob. Hah!

Other funny story. I had my ct scan today. The technicians had placed butterfly stickers on the machine, and flowers, lots and lots of "feel good" stickers. The problem is, when you are moved into the position for the scan, you couldn't actually see them, as they had been placed for someone standing beside or in front of the machine. Now, I find it easy to distract myself when I have something to look at, such as counting the dots on a butterfly wing., or doing the "one of these things is not like the other". lying right up to the CT scan is not the way to distract. Anyhow, I mentioned it to the woman who was doing the injection, and she immediately moved one down for me.... When we were done, and they could move more, they moved a bunch more down!

Just goes to show, if we speak in a nice way, and make suggestions with the reason why, we can improve the world around us, in little ways, for the next person who comes along.
 
was talking to a coworker friend of mine who was diagnosed with stage 3b Melanoma approx 2 years ago....his debt is 25,000 and that is with a significant excuse of debt from the hospital. crazy eh. welcome to the us. oh, and that is with him being an employee and having insurance.
 
Crazy, eh? Lucky we live where we do. Hugs, Pinga.

*Bette puts out a few pots of herbal tea and some homemade scones.*

(Also, the world has just twisted completely off its axis. I've just written a post whose first approvers were jae and blackbelt.)
 
Just sitting down to enjoy a bit of tea - thanks Bette! Taking a little break from packing for Newf - I fly out tomorrow afternoon. It's a challenge to decide what clothes to take, and no doubt I've packed a bit too much!

Indeed - that american health care is frighteningly expensive. My cousin was left with hundreds of thousands of debt when his wife, who died of lung cancer, spent a long while in ICU before her death. They did have insurance. Negotiations worked the balance down significantly from where the hospital began, but it was an enormous cost.

My thoughts to with you tomorrow pinga.
 
The Cancer Clinic is caring, informative and will help you a lot. I hope some one is going with you

It helps to have an extra pair of ears. Sleep well.
 
Good suggestion Crazyheart - have an extra set of ears for listening - my brother has a friend who's a pharmacist who has been very dedicated in going to many of his appointments with him, in addition to his wife, and it's been so helpful to them.
 
i know that ishould, but my bf is taking care of a sick grandchild, spouse is not the best option,and well, haven't told anyone else locally that i could ask, plus short notice. I know, not brilliant. It will work out.
 
Oh Pinga, ask one of your euchre gals, or someone else. You say spouse isn't best option-is he better than being alone?
It is worthwhile to take someone.6 years ago I was diagnosed with melanoma.. It was confirmed after the first mole was removed. After my 2nd surgery I took a friend to hear the results. Come to think of it-another friend went with me for first mole removal.

It's probably time you told someone local.
 
Cyber hugs to everyone dealing with doctors and hospitals and scary diagnoses. This isn't a fun part of being human. I too think it is best to take someone along to appointments. Often we just don't hear 'right'. Sometimes a bit of company is advisable on the way home.

I tossed an extra prayer shawl on the couch - and there is some Sleepy Time tea on the kitchen table. Take whatever is useful to you.
 
i have told some people local...just was waiting on some more information. I know, i know. I wasn't even going to tell you folks, but, this room sucks you in.
 
Its a good place to dump concerns ... even though sometimes appears like you are talking to the "self" ...

Some here don't understand that conception ...
 
Pinga said:
i have told some people local...just was waiting on some more information. I know, i know. I wasn't even going to tell you folks, but, this room sucks you in.
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Sometimes you need to let such news seep out gradually, as you yourself feel you can tolerate the responses. But sometimes too, IMO, the responses can surprise us - in good ways, not just bad. I hope you will find peace and accompaniment for your journey pinga. Thoughts & prayers go with you.
 
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