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Nancy, sorry to hear of your aunt and uncle.
Pinga, I'm glad your Dad seems to be doing ok. Good on you for getting into the gym right now!

Last week, I heard of someone who died in her sleep from an HAE attack. She was 28, and a brother and sister were mentioned in the obituary making me wonder if they died from HAE too. There's the general sadness when you hear of someone who passed away where your contact was limited but there was a connection, and then there's the more personal fear. While my attacks seem to differ from how most get them, it's still a concern.
 
I sometimes am sick of the effort ... a wide ranging thingy ... as mortals make effort to put down the other guise to get elected ...

Nothing positive there ... created declination or decline of the empire-like modes ...
 
Oh dear, Chemgal. That would be worrisome and scary. Are there various levels of HAE? i think of people who have mild epilepsy and those have frequent seizures unable to be handled by med. You also seem to be very on top of your medication. I wonder about people who have less capability than you. to do so.
 
I am told I have full time epilepsy ... out of it permanently? The land of the visionary regarding the invisible ... impossible?

Perhaps just another borderline to understanding!

Some say I can bring a stop to a line, or start a string of nonsense ... or extend the unknown, not sensible ... not hard when dwelling within those devoted to unknowing ... or stoically into passions alone ... without Q'lues ... Luce Q's? They don't know when it is appropriate to rise as deterrent to that desired ...
 
Look, observe ... don't touch unless the other has set a Nous for yah ... La Rae ET ... in the community of La Red-Oh?

You could be hooked ...
 
Tabitha said:
Good for you for getting back to crossfit. I'd consider myself lucky to have so few witnesses to a puke.
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I might have been able to make it less obvious that was what was going on if there were a lot of people there. When you're the sole person, it's kind of obvious.
 
Sounds nasty pinga! But you weathered it - well done. Somehow I don't 'get it' that a fitness routine that results in puking is somehow helpful to the body. A cross fit gym recently opened near my house, so I looked into it a bit - didn't seem to be something I would enjoy, but that's just me. I have other friends who regularly push themselves to do so much more than I ever would.

And glad to hear your Dad doesn't seem to have suffered any lasting effects of his stroke - worrisome though. Hopefully the med change will help.
 
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ChemGal said:
Last week, I heard of someone who died in her sleep from an HAE attack. She was 28, and a brother and sister were mentioned in the obituary making me wonder if they died from HAE too. There's the general sadness when you hear of someone who passed away where your contact was limited but there was a connection, and then there's the more personal fear. While my attacks seem to differ from how most get them, it's still a concern.
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Scary reminder of our mortality. Most days, many of us can fortunately live our lives with thoughts of mortality distant from our immediate consciousness - then these things happen, and it causes pause for reflection. Hoping you're feeling better today ChemGal.
 
I'm presently sitting in a log cabin in Ucluelet on Vancouver Island - finishing my morning coffee, soon to get dressed for some hiking on the rocky Pacific coastline - looks like a beauty day ahead, with beach walks planned for low tide this afternoon.

We had a great visit with our daughter, her partner & his mom who is visiting from Australia - we all stayed together for a few days at a little cottage on a small organic homestead & apiary in the Comox Valley - simply beautiful and very sacred place. We had beach walks, mountain meadow hikes, long chats & meals al fresco on the lawn next to a beautiful garden, surrounded by tall trees. Awakened by the rooster and fresh sunshine, entertained by the Indian Running Ducks in the pond, visited by Gus the farm dog, some deer, some bunnies. No wifi there - apparently it is detrimental to the bees - who knew? It was good to have few days away from the computer.
 
Nancy - hope your relatives are settling - and that they will get home again to live out their days - or if admitted, that they will share a room. We have been able to do that from time to time at my hospital, when spouses are both in. Just seems the right thing to do - if, of course, they wish it - which it sounds like your family would. Hugs to you as you walk with them through this chapter. Hopefully other family have arrived to help.
 
Carolla said:
Sounds nasty pinga! But you weathered it - well done. Somehow I don't 'get it' that a fitness routine that results in puking is somehow helpful to the body. A cross fit gym recently opened near my house, so I looked into it a bit - didn't seem to be something I would enjoy, but that's just me. I have other friends who regularly push themselves to do so much more than I ever would.

And glad to hear your Dad doesn't seem to have suffered any lasting effects of his stroke - worrisome though. Hopefully the med change will help.
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Hi Carolla. I was doing CrossFit for gosh, over a year intensely, and was never sick. I also have only witnessed one person be sick in the early days of our training and he was not listening to the coaches. This was more about the meds and then any exertion. I think had I been walking, or running, I likely would have felt the same, or maybe not, as the nausea only came into effect when I laid down on my back in order to do the press.

It is worrisome. He has had a number of TIA's. A stroke is likely what will take him. He is 90.5 now.
 
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Pinga said:
Oh dear, Chemgal. That would be worrisome and scary. Are there various levels of HAE? i think of people who have mild epilepsy and those have frequent seizures unable to be handled by med. You also seem to be very on top of your medication. I wonder about people who have less capability than you. to do so.
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Yes and no. There's no rhyme or reason that's known as to why some have it worse. Someone can have really low levels on the blood test but have few attacks. Another person's levels can be close to normal yet that have numerous attacks. Severity is based on someone's symptoms and it can change. I'm considered to have it severely due to the number of attacks I have, as well as how often my throat is involved. The fact that my swelling is minor didn't seem to matter, although I suspect that would have been factored in if it was just hands and feet.

I know little information about what happened. Did she really not wake up, or is there just no evidence that she woke up? Did she live alone? Did she have medication at home? Was she on prophylactic treatment? Did she have numerous attacks in a year or was it just a very unlucky bad one for her?

I've figured if a throat attack got bad enough I would wake up well before my breathing was severely affected, but I can't be certain of that. With my wisdom teeth I slept through the night and awoke to a quite swollen tongue, but I would like to think if that happened without the tiredness from surgery and without already having a normal amount of swelling that I would have woken up before it got to that point.
 
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I think you'd wake up once your breathing was compromised. I've gone through periods of fairly severe asthma, and a certain level of breathlessness seemed to wake me.
 
BetteTheRed said:
I think you'd wake up once your breathing was compromised. I've gone through periods of fairly severe asthma, and a certain level of breathlessness seemed to wake me.
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That's partially why hearing what happened is hard. Why hadn't she called 911? Why was she have said to have died in her sleep?
 
Likely questions with no answers ChemGal. Speaking for myself, dying in my sleep seems an okay way to exit.
 
Carolla said:
Likely questions with no answers ChemGal. Speaking for myself, dying in my sleep seems an okay way to exit.
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It's a sweet way to go. It can be devastating for those left behind. I had an uncle, 66 years old, seemingly in good health, died in his sleep of a heart attack.
 
Personally, I'd like to die in one of two ways - either as a martyr (first choice), or in Christian service.
 
Isn't a martyr one that dies to escape the drunkenness with life so they can see the light from another perspective?

hen if you serve the light in illuminating the dark unknown ... would we know god better than those who confine everything in books, boxes, and jars ... where secret desires are buried?

When you die is this like an escape into the unknown ... sort of an abstract thought that can't be defined? Alas who has the desire to understand great things and non-things ... akin to metaphysics as energy of positive and negative nature!

If caught up in the middle of these two extremes ... would existence be like walking a line between polities ... having a foot on both sides of the river as it flows and thus watching the indeterminate go by. How doe one get right into it bilaterally ... in deduced form? The things to question are indeterminate ... or abstract if you wish ... all of the above? Thus the ad lib ... ind of abstract freedom that you can't mention to stones ... they tend towards idealistic fixations ... against learning. One must admit to conditions creating personal advantage ...
 
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