Disability doesn't define a person. It defines the degree to which a person experiences barriers in society. The 'disability' is in society.
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Northwind points out something very important, and that is the notion of multiple identities. Disability is not a person's sole identity. Rather, there are intersections of identities. Despite what Kimmio wants to suggest, disability does not universally define a person, nor does it universally define their experience.
You say you don't want to talk about my son, you want to talk about disability rights. To remove my son and my son's experiences from the conversation implies that you only want to talk about the experiences of people with disabilities that fit your preferred definition and discussion of disabilities. You can't do that. Similarly when you dismiss my contribution to the discussion you are dismissing the academic contribution to disability discourse of a caregiver for an individual with profound disabilities. Somehow you have decided you are the arbiter of what constitutes an appropriate contribution to the discussion of disabilities based on whether it supports your ideas and arguments.
Whether you care to admit it or not there are many people with disabilities, and their allies, who work in a broad range of services and academia who would nuance your ideas. None of us would dismiss the social model outright, but many of us would bring a level of flexibility and nuance to the conversation that you are unprepared to offer. That level of inflexibility does a greater disservice to people with disabilities that I think you can appreciate.
Kimmio said:I would also say she is more of an exception - PWDs are underrepresented in professional positions. One of the reasons (not the only one) I chose SW related work - was because I assumed it would be easier, less discriminatory to succeed in it. Not quite true in reality but probably better than some fields.
She did have to leave her country of origin because of it. And being a visible minority would then open her up to other prejudices on top of it.
Could we say that a person with severe impairments whose primary barriers are not in society but are with their impairment do not experience disability, but rather, predominently their impairment? Is that fair? To seperate the personal experience of impairment from the experience of disability? So impairment is impairment but disability is what society does?
I don't understand what isn't clear about it.Could you please clarify this statement?
Or can we accept that there's more to disability than the social model?Could we say that a person with severe impairments whose primary barriers are not in society but are with their impairment do not experience disability, but rather, predominently their impairment? Is that fair? To seperate the personal experience of impairment from the experience of disability? So impairment is impairment but disability is what society does?
That there is no one model/BS that accounts for everything -- like tools in a toolbox, different tools are good for different tasks and when you use a different tool, different aspects of reality become important and other aspects become unimportant? Nifty, that :3Or can we accept that there's more to disability than the social model?
There are other models but they are not the best models...because...In the interest of human rights it's better to seperate the terms 'impairment' from 'disability' because disability recognizes the discriminatory factors of normative expectations in society. So as far as I and proponents of the social model are concerned that's where the other models fall short and that is why the UN and WHO have adopted the social model.Or can we accept that there's more to disability than the social model?
That there is no one model/BS that accounts for everything -- like tools in a toolbox, different tools are good for different tasks and when you use a different tool, different aspects of reality become important and other aspects become unimportant? Nifty, that :3
I think we have to seperate impairment from disability. They are two different but interrelated things. That is important.
So maybe your friend is impaired but has not been disabled by attitudes and systems outside of herself towards her impairment. Or, maybe, like many, she has struggled with keeping up to 'normal' and that managed to escape people's notice that she was put in a position to have to do that - and she has succeeded in doing that. But I have never met her or asked her about her experience. I have met successful people with disabilities. One boss went from a disability rights activist to a management position in public service. She certainly deals with barriers but she is resolved to change things about society in whatever position she's in. It's always about improving the lives of people with disabilities. I don't have that kind of fortitude or support as she does.
Could we say that a person with severe impairments whose primary barriers are not in society but are with their impairment do not experience disability, but rather, predominently their impairment? Is that fair? To seperate the personal experience of impairment from the experience of disability? So impairment is impairment but disability is what society does?
She most certainly has experienced discrimination over her life time. I don't believe she has been so worried about being normal. I think she has just wanted to be a productive member of society and is willing to overcome barriers to achieve this.
I am only trying to seperate impairment from disability to highlight the difference (and I'll use myself as an example for illustration of my point) between impairment and disability. At home, if I experience stiffness and balance problems getting things done before work and it takes more time - that is me experiencing my impairment. If, in addition to the time it takes being unpredictable depending on how I feel, on the way to work I have difficulty navigating high curbs or going around sidewalk repairs/ construction, I miss the bus, and I am late and I get reprimanded at work for not fitting expectations about timeliness - that is me experiencing disability. I didn't do anything 'wrong', it's the way my impairment interacted with the visible and invisible barriers - i.e. expectations about normal time things take, and sidewalk issues.So I've read this again and I will try to clarify it. So if someone has impairments and somehow does not experience societal oppression, then they are impaired? If a person is impaired and does experience social barriers then that person is disabled......have I got that right?
How do you determine which is what? What if they have decided to ignore society "rules" and live their life as they see fit?
@DaisyJane
I understand your son has physical suffering. I don't want to comment about your son. You are his caregiver. I want to talk about disability rights and PWDs as whole individuals in their own right.