I agree with you LP. As I pointed out earlier, I am worried that specialson, aka Matthew, may suffer needlessly because he cannot consent.
Today there was a detailed obit in our newspaper. It shared the story of a woman like Matthew who died over the weekend. She lived her last few years in total pain because of her cerebral palsy and the deformities that had developed following years of spasticity. I read that article and my heart broke. That is my greatest fear. I am not afraid that some roving group of physicians will start overdosing people with disabilities because they are cheaper dead. I am afraid that I will have to watch Matthew suffer for a prolonged period of time with poorly managed pain because he does not have the abilities to tell us his wishes, or even to effectively communicate his pain. I am worried his death will be an agonizing journey through deterioration and I will be forced to watch with no ability to influence the situation.