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Sorry to hear about this ChemGal. It must be difficult to not become alarmed when you hear of such news.
 
Thanks Carolla. Chemguy was pretty comforting when I told him about it. He takes much of the attitude that I've never had a bad attack, and it's probably not how it will manifest in me. Maybe he's right, but it does concern me, as I think I've had symptoms for a long time, well before I was an adult, but I blamed things like post-nasal drip. Things did get bad enough that I completely lost my voice at times recently but not years ago, so it's possible I will get worse attacks in the future.
It's also concerning on a less personal matter, these are young people, with treatment, who are dying. I don't know the details to know if they were avoidable, needless deaths or not.
 
Chemguy is a keeper :-) I'd probably likewise be reminding you that you've been managing all this time without knowing the diagnosis, and while not feeling 100% for sure, you have been coping okay - so that's likely to continue to be your path.
 
ChemGal - news like that must always cause concern within you. May you continue doing all you are doing and can do to keep yourself as healthy and as safe as possible. May you find some small comfort in knowing that your friends here at wondercafe2 care about what you are going through, are routing for you, and support you in your journey.
 
just heard aboot the Aboriginal Gangs in Winnipeg -- how dangerous IS Winnipeg? Do you have to lock your doors at night? Are there places in the daytime you shant walk?
 
I don't live in Winnipeg, Inanna, but I do visit occasionally. There are definitely places I haven't been that I haven't felt comfortable in, but that is like any city. There definitely are areas that are more dangerous than others - and dangerous in different ways. My guess is there are some areas that I would consider dangerous that would have nothing to do with gang related activities. If I lived anywhere in Winnipeg I personally would keep my doors locked day and night, whether I was home or not. There is a lot of crime in Winnipeg, perhaps higher than some cities - how much is gang related I am not sure.
 
It was always ironic to me that The Forks with all its entertainment and beautiful lawns and trendy shops
is just a hop, skip and a jump from North Main. This is the part of town that I found scary.
 
Chemgal, we used to read about children and teens dying of allergic reaction. My oldestson broke down one day and said "but mom, you don't know what it is like when food can kill you". he was right. Yet, we ensured we took precautions, and we worked through the scenarios, and we made plans to reduce risk. I hope that the overhwelming news that you hear of doesn't hinder you from enjoying life, but, rather is a thing that helps you learn how to cope, and to reduce risk.


Carolla: Books read include a favourite re-read. I am a huge fan of Patrick Rothfuss and re-read his novel for the third time. He is a quality writer. Sample quotes can be found here: https://www.goodreads.com/work/quotes/2502882-the-wise-man-s-fear

I also read the book Gone Girl. A complex mystery novel. Well written, but was a struggle to finish. I'm not sure if it was me or just the premise didn't appeal. It will soon be a movie, I understand.
I read Still Alice, which I had lying around and hadn't gotten into previously. It was an easy quick read, though the topic isn't an easy one. Interesting to alzheimers from the mind of someone with it. Again, simple story , not great writing, but, good chat about book.
hmm, read another mystery. picked it up. wasn't great. "good as gone".
I have another couple of books on the go. Want to clear out some paperbacks that had stacked up.
 
Thanks Pinga. I talked to my GP about a new medication that's available. She wants me to see my hematologist, but she looked at the info, thought it was reasonable and she can see where a non-IVed preloaded syringe would reduce some anxiety about the what-ifs. It's not as fast as administering an epi-pen, the needle isn't pre-attached, but it's way faster than what I have now. I would need training, I don't know if that's set up here quite yet or not - just learning to inject is never enough it seems, it needs to be specific for that med.

The issues with rare diseases are more frustrating. 1 hospital in the city carries my current medication, I don't know if any carry the new one yet. If I go to a smaller centre, chances are no one will carry it. If I were to say, move to Whitecourt, my hematologist could arrange for the hospital to have some on hand. ER docs are great about treating allergies - so much so that when I go with my angioedema letter they still want to give me the allergy meds. Another good reason to carry this newer one.
 
@Pinga - loved Gone Girl - complex is right! And Still Alice is wonderful ... she's written another, but I haven't read it. Looked at your quotes - I think I will have to put this on my list for sure. I just finished The Goldfinch - too long, and kinda depressing actually, unsatisfying ending - but it did get lots of rave reviews.
 
I've got into a supervised exercise program this month :) Or at least I'll be assessed to ensure it's suitable. Talking to the woman on the phone has made me really excited for this. I wasn't sure if I really fit their criteria and the admin person I spoke with a while ago wasn't sure either, but the person who I will actually work with thinks it will be perfect for me and she sounds enthusiastic to get started with me. At first she told me Sept, but she managed to squeeze me into an assessment so I can start next week :)
 
Hmm, I don't normally do activities in the house that I would wear shoes for, but maybe I could put something down on the basement floor so it's not so hard, or something upstairs that would prevent the carpet from breaking down.
 
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