Sending hugs to those who are so sorely in need of them for various reasons. Life does seem to go on as Pinga said - some bits are happy, others sad, challenging or painful. We almost always manage to cope somehow - some days better than others- but just sitting down for a cry is a form of coping!
I have a wee bit of experience with oxygen as my sister was put on it when she became much sicker while staying with us. A guy arrived from the oxygen supplier and set up a big, and fairly loud concentrator in the house. She had a super long hose so she could get around - to the bathroom, kitchen etc. She hated it and complained bitterly about the hose being awkward to live around. I think one would get better at handling it as time went on. The most challenging thing was going out. For that a portable tank was required- it was too heavy for me to cope with, and certainly beyond my sister's capabilities. I think there must be something smaller and lighter available. Maybe refillable liquid oxygen? Sometimes my guy would set the portable tank on her electric scooter and we could go out for a walk.
There is a kid fairly locally who is on oxygen too. She has a portable concentrator that runs from a battery to use when outside the house. It doesn't interfere particularly with her school access or social events. It is about the size of one of those shopping bags on wheels. She just parks it in a convenient spot and uses the hose within the room .
