It's complicated, for sure. As I am learning to accept aging with CP - it is not a progressive deteriorating condition itself - the brain damage doesn't change - but how the effects manifest can change. One could develop arthritis much earlier because of wear and tear being different than that of an able bodied person. Or people who never had bladder incontinence before might experience it earlier because of muscle control weakening with the supporting but not as much used muscles aging - and so even though not progressive, still kind of 'deteriorating'. I've been reading some newer material on CP and aging. There isn't much to go on except testimonials and some minimal research. The bulk of CP info is for parents. So, I thought my ability level could never change before I was a senior, but it can! And rather than think of dying I think about working on what can be worked on and adapting to what can't - even pain. Now if competent minded adults with CP want to commit suicide because of decline in functioning, that would make me sad and angry and over time would make me wonder if my life is seen as less because of their decision. I already feel my life is worth less in the minds of others. A common feeling resulting from discrimination. I suppose that doesn't make sense to people how people could view it as as equality to live issue rather than equal right to die issue for many PWDs.You will note that I included disability WITH a progressive, deteriorating condition. As a result some part of the ongoing experience of disability crosses THEIR threshold of unacceptable. In the end, it will always come back to autonomy and consent. For me, this is like abortion. I would never have an abortion. I would likely feel there is never a situation, FOR ME, to justify an abortion. However I strongly support the right for others to make different choices.
I don't agree that because someone with a severe, intractable condition (say ALS) has decided a feeding tube meets their threshold of unbearable suffering suggests my son's life is of lesser value because he lives with a feeding tube.
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