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Warning: whine follows

I stubbed my baby toe this morning on the claw foot of our living room couch.

It is now swollen and turning a lovely colour. Hurts to wear a shoe

Ok, end of whine

I know the feeling. As a lifelong klutz, stubbed toes are a bit of a regular event for me.
 
I saw my neurologist on Wednesday. I'm doing well, but the parkinsons is progressing. We talked about my pills (lovodopa) and decided that I should take according to a different schedule. Every three hours during the day rather than breakfast, noon, and dinner. These pills act quickly (within 15 minutes) but their effect soon wears off, causing dyskinesia (twisting, twitching, writhing movements). Taking one at a time every three hours should help.
But she also prescribed Amantadine, a liquid medicine to smooth out the rise and fall of lovodopa. It works. Within two days my dyskinesia had faded. And I was sick! The Amantadine tastes awful but I could stand that. It gives me cramps, and bad pains in my stomach. I feel light=headed and dizzy; and disoriented. And my lips tingle. These are not listed as usual side-effects. Starting Wednesday afternoon, I took it Thursday and Friday. By Friday afternoon, even my friends at bowling were concerned.
Knowing that I was leading worship on Sunday, and not wanting to get any sicker, I discontinued taking any. By Saturday afternoon I was feeling better, today I was back to my old self - including the dyskinesia.
I had planned to start taking Amantadine again tomorrow and give it a fair chance for my body to adjust to it. But every time I think about it my body says 'NO'.
 
Do you have a provincial health line you could call for advice? Sometimes with dr/pharmacist assistance you can ease into a med. Start with something like a 1/2 dose and work up.
Ask the questions and see if there is another way-heck there may even be a different drug.
 
So, getting geared up to go visit Little M (and for him to visit us, too). Basically, we go to Ottawa for a couple days, then we're going to drop down and see Lake Placid (only 3 hours from Ottawa), then head back to London with him so he can have a few days at home. He'll take Greyhound back.

I hope you enjoyed the weather we ordered for your stay here in the nation's capital. Apparently in Ottawa for 2017 summer is spelt f-a-l-l
 
I hope you enjoyed the weather we ordered for your stay here in the nation's capital. Apparently in Ottawa for 2017 summer is spelt f-a-l-l

It was lovely. Thank you. We went out to Meech Lake and hiked the Wolf Loop trail. It was muddy in places, but passable. Also did a bit of shopping for stuff Little M needed for his dorm room and some other general sightseeing.
 
I saw my neurologist on Wednesday. I'm doing well, but the parkinsons is progressing. We talked about my pills (lovodopa) and decided that I should take according to a different schedule. Every three hours during the day rather than breakfast, noon, and dinner. These pills act quickly (within 15 minutes) but their effect soon wears off, causing dyskinesia (twisting, twitching, writhing movements). Taking one at a time every three hours should help.
But she also prescribed Amantadine, a liquid medicine to smooth out the rise and fall of lovodopa. It works. Within two days my dyskinesia had faded. And I was sick! The Amantadine tastes awful but I could stand that. It gives me cramps, and bad pains in my stomach. I feel light=headed and dizzy; and disoriented. And my lips tingle. These are not listed as usual side-effects. Starting Wednesday afternoon, I took it Thursday and Friday. By Friday afternoon, even my friends at bowling were concerned.
Knowing that I was leading worship on Sunday, and not wanting to get any sicker, I discontinued taking any. By Saturday afternoon I was feeling better, today I was back to my old self - including the dyskinesia.
I had planned to start taking Amantadine again tomorrow and give it a fair chance for my body to adjust to it. But every time I think about it my body says 'NO'.

I took amantadine for a while to help with my dyskinesia, and maybe dystonia, I remember it being really hard on my stomach and a warning about not getting out of bed too quickly. I looked at the Mayo Clinic website and light-headness, dizzy and disoriented are all listed side effects. My pharmacist is amazing at helping me figure out to address side effects - I have also had some success in Ontario with Telehealth helping in this regard - I would talk to a pharmacist before restarting because you don't want to complicate your condition. I hope you are able to find something that is tolerable.

Here's one of the things that I read from the May Clinic (I am not a doctor, justt a user of medication and someone who has had dyskinesia)
Patients with Parkinson's disease must be careful not to overdo physical activities when their condition improves and body movements become easier since injuries resulting from falls may occur. Such activities must be gradually increased to give your body time to adjust to a change in balance, circulation, and coordination.
 
I dropped in at my pharmacy yesterday and talked with one of the pharmasists. Apparently the side effects I was experiencing from my medicine occur (but usually not as bad as I described) in 10% of the people taking this terrible stuff. We agreed that I should give it another try - but introduce it slowly. So yesterday I took one dose - and less than half the prescribed amount. Today I've taken it twice, but again less than half what I should be taking. So far so good. And I've learned how to deal with the taste somewhat. Hold the shot glass with the small amount in one hand; a big spoonful of applesauce in the other. Throw the medicine to the back of my throat, swallow, and immediately thrust the applesauce into my mouth to swirl around and then swallow. Not good but bearable.
Book Club tonight.
 
I hope it doesn't ruin the taste of applesauce for you.
I had strep throat as a child and had to chew the pills because they were too big for my sore throat to swallow. I took each one with a handful of raisins and couldn't eat raisins for years without being reminded of the foul taste of those pills. Ick!
 
I hope it doesn't ruin the taste of applesauce for you.
I had strep throat as a child and had to chew the pills because they were too big for my sore throat to swallow. I took each one with a handful of raisins and couldn't eat raisins for years without being reminded of the foul taste of those pills. Ick!

It took me years to eat homemade strawberry jam again because that's what we used!

@Seeler I'm glad you can titrate this better. Some people drink a bit of diet pop before hand because it dulls your taste buds.
 
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