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I think it would also help if things were clearly laid out for the public.
What's the criteria for homecare? What specific help will home care do?
What's the criteria for long term care? What's the wait lists? Etc.

It would help lots for planning plus I think it would create more pressure politically to fix issues as when it's not known until people are in the situation many don't know about the issues and those who do typically have their hands full.
 
Would also help if the criteria was actually followed across the board...mom very specifically was to have evening home care when she came home but our region refused to do it.
 
Well, the rain certainly made a big difference in a short time...trees are almost all leafed out and our grass has grown a couple of inches (or more) and is a lush green too...yesterday I looked at it and figured I didn't need to arrange for anyone to mow as it wasn't growing at all - today it needs mowed!
 
And Heaven is a dark mysterious state of mind ... that we don;t understand any more than the incineration of Sam Mcgee as a demonish 'd idea ...
 
No snow and no rain - I'm only happy about that as it makes the paper deliveries easier...Mirror papers are delivered and I'll soon head out to meet the gal who will help me do the rest.
 
I am so glad to be out the lab at last. I get bloodwork done weekly in preparation for my treatment. I go to the same lab each time. I have been to this particular lab at least 10 times since March. This was my 8th weekly visit in a row. I think they ought to recognize me by now. :unsure:

The lab has an app and service called "Save My Spot". You can check in from home and arrive closer to the time you will be called. I've used this app about 6 or 7 times now with no problem. Today I went in and was waiting. They skipped my name twice. When I went up to ask about that I was told I was supposed to let them know when I arrived. I told the woman I'd been coming here many times and that this was the first time I'd had this problem. The woman did not even acknowledge that and was extremely condescending. She had incredibly bad customer service skills. When I was checked in, I was told to go to a cubicle as per the normal procedure. I waited in there for about ten minutes and had to ask if I had been forgotten. Thankfully, the tech who tool my blood knows me and responded well to my concerns.

Interestingly today they had "how did we do" cards inviting customer feedback. You can be sure I have done that and have given my feedback. If this had been my first visit I would not be back. I'm seriously thinking of checking out the offsite lab the hospital runs.

I've noticed that it doesn't take much for me to feel a pile of emotions since my diagnosis. It has always pissed me off when someone in healthcare is disrespectful. I'm coming down from this now after the vent on the feedback site and here. It might take a bit longer.....

Vent over. :mad:
 
My old employer always stated that report with customers indicated favorable echo, alas his executive following seemed to learn bullying was best! Can you image?

Friends that have gone through Chemo have related to me how their emotions/thoughts were affected by strange chemicals in the body. Even the medical professionals do not appear to be conscious of how simple things like vegetable phenol's and terpene's may do this ... as they directly act as agonist to several opioid receptors in positive or negative way depending on the individual. These may be simple things like stuff in chocolate, nicotine-oids, or caffeine-oids! Difficult to av-oid!
 
Northwind said:
I've noticed that it doesn't take much for me to feel a pile of emotions since my diagnosis. It has always pissed me off when someone in healthcare is disrespectful. I'm coming down from this now after the vent on the feedback site and here. It might take a bit longer.....
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The steroid may also be a factor too - not sure if that's something you're experiencing.

I'm dealing with some frustrations today too. My GP is on mat leave, I met what I thought was her replacement for the entire leave, nope, she is gone. So new doctor today, but she's only around for a month. It sounded like I may have had an option between doctors when I made this appointment - the receptionist seemed to care more about reassuring me it's a 'lady doctor' than my concerns though. I asked about someone who would be somewhat familiar with blood disorders and she just said they all are - they all went to med school. :cautious: I have a pretty good idea of the amount of coverage they give to blood disorders - not enough! The doctor I saw last time I would guess was younger than I am, today I'm quite certain. I don't have a problem with young doctors but it is a bit of an adjustment of them actually being younger than me, especially after mentoring med students.

My GP (the one on leave) gave me enough prescriptions for an entire year the last time I saw her. The pharmacy once again f***ed it up though, only giving me 75% of my birth control pills, short changing me. Apparently take 1 a day to them means take one a day for 3 weeks and then take nothing for a week :mad: then repeat process, running out of pills after 9 months instead of 12.
At least the tech I really like was there to sort it out and input this new prescription properly, and the new doctor didn't give me a rough time giving me a prescription now.

Off to a lab myself now as my blood work from back in March is concerning. I was worried about it right when I saw it online but I figured the clinic would call me if they were concerned too - they always say don't call about blood work. I know I mentioned it to @Pinga at the time, not sure if I said anything here. I had some insurance stuff I was dealing with so didn't want any unnecessary appointments complicating things. It's not a new abnormal result either, something I have had show up abnormal before this is just the highest that it has ever been. I did shoot off a message to my nurse at least and she did respond saying that it wasn't bad. It's just tough as they only give the normal range, not what's 'extremely' high. Apparently though this is something that should have been enough to flag a phonecall from my GPs office. With multiple doctors doing the coverage though I think I fell through the cracks.
 
Thanks @ChemGal I hadn't thought of the steroids as a factor. I do get some at my treatment as a way to prep my body for the chemo drug. I'm not sure how much that is in the grand scheme of things. It could though be one factor. Add the toxin that is the chemo drug and the fact I haven't been feeling great this week (normal side effects) I'm not surprised I'd feel more in response to this. I did start feeling more of a reaction to this type of thing before I started treatment too.

I hope you get your stuff sorted out and that you can trust your doctor. When you have q condition like yours, you want the doctor to be knowledgeable.
 
Hugs @Northwind and @ChemGal

Health care professionals should be even better at customer service as they are dealing with people in various states of health/sickness and degrees of emotional upheaval...alas, it isn't always the case.

Mom was to be moved back to acute care LAST weekend as the renos were complete but the gal who helped with the deliveries said mom was still in the room in long term care yesterday.

Good deliveries and I need to make a point to return to the greenhouse (20 mins away) as she has some great novelty planters and pots.
 
Vent away Northwind. Those working in health care should be well trained to provide excellent, considerate service. In situations like yours they should be doubly caring as they know patients may be stressed and reacting to meds.
 
KayTheCurler said:
Vent away Northwind. Those working in health care should be well trained to provide excellent, considerate service. In situations like yours they should be doubly caring as they know patients may be stressed and reacting to meds.
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That's true. She didn't take the time to know anything about me.....thought I was wearing a wrap instead of hair today so that should have been a clue. Plus the fact I told her I had been in weekly...... Sadly, I don't think she would get it. :(

Of course my day continued. We got the truck and car licenced in BC. Of course my AB plate didn't want to come off easily. I called the Toyota dealer to see if there was a trick. I ended up going there and they helped me. They had trouble with it too, so that felt better.

I went to the local wig store and tried on a couple. I can get one there for much cheaper than I thought, so I'm going to buy one.
 
Lab went well today. The techs hate using my forearms, I can feel the veins quite well although they aren't very visible. I think I would have problems just because of the depth, but that's moreso anxiety of the needle thing. She found a spot she could see though and used that and was confident about it, no heating my arms up (actually can be helpful), slapping the veins and some other weird things people do that I think is more habit/superstition than actually helpful. Since it was just a more detailed follow up test only 1 vial.

Fingers crossed I get the results when the clinic is still open tomorrow, this new doctor has holidays.
 
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