2015/09/23: Day 3 - Chemo 1

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Day3: I will be honest and share that I was a bit anxious going into treatment today. I knew that I was in great hands, and would be fine, but, well, I was pumped. Kinda like the day of a go-live, when you have prepared everything and have a great team, but, you know...s**t happens.

So, left the house at 9:30, got blood work done at arrival, then up to chemo for pharmacist training me on my meds, what they do, symptoms etc..for a good 20min, then, head over to chemo waiting room, and before long whisked in for more training of what they will be doing and what I will see. You can have a friend sit with you, and they can come & go as well. Not necessary, but always nice to have company

So I am not sure when they started to wrap arms with warm towels to pop veins, but, hey, IV's are a breeze, or were the last few times including today.

Due to a combination of factors, my protocol includes significant flushing of the kidneys, so 2hrs of saline/potassium, prior to 1hr of chemo/cisplatin, then 1 hr of saline/potassium again. Hah- no problem having a full bladder for radiation today.

The nurses were wonderful, talking through everything, including why they cover the chemo with a brown bag (light sensitive, like some antibiotics are). There had to be 50 chairs. Each with a little tv you could watch, earphone you could be loaned, and warm blankets, pillows etc. Most were occupied. Some people were in out & quickly, others for an hour, and hours like me for 4hrs. Each protocol is different, and each person is different, and so symptoms, impact are different. I, for example, am unlikely to lose my hair, but...I do get to get away with being a B**** on occasion for the next 3 days and blame the meds!

It was great to see W's smiley face pop in for a quick visit on her lunch. Catching up, having a laugh, getting the lowdown on this addition which her cousin was an architect for. The room is lovely, with lots of natural light shining in, warm natural wood ceilings, and glass...it feels hopeful, if that makes sense.

Had a great snacky lunch packed by T.

 Having a healthy lunch during chemo treatment. You can see how lovely & light it is.  Only challenge...my legs are too short! So, I tend to be in the laid back relaxed position. TV is up & behind me, to swing around, lots of plugs for pc, phones, etc. Drinking my requisite 64oz (british) of fluids per day

We heard this bell in the chemo wing and then the waiting room broke into applause. We joined, but had the quizzical look that showed we didn't know what it was. A woman and her husband across from us noticed and explained that it was the sign of the last treatment. Neat idea. Now to figure out if you ring it at last chemo, and last radiation, and last brachytherapy. Hah. Seriously, it is a nice signal and again, signal of success, focus on the future etch. So many smart things at this centre.

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Once done, a quick trip downstairs for radiation. It is done after chemo as chemo "lights up" the cancer for the radiation....or at least that is how I understood it..it basically makes the radiation more effective so radiation is always done after.

So, a drive home, where I didn't "suck wind" once (only those who know me as a passenger know that I can be a nervous passenger). Thanks T for another great day.

Finished a healthy dinner cooked by my spouse, K. Now for a quiet night of colouring (thanks J) leaning up against my reading pillow (thanks L&J), and enjoying flowers from work...and then prep for tomorrow.

A lovely floral arrangement to come home to on the first day of chemo. Thanks to my coworkers in IT security. You can't tell, but it is about 30 high, and has beautiful scents from roses, freesia and lilies. A delightful reading pillow made by LP which arrived the first day of chemo. It is so comfy. If you look closely you will see a pocket on the side (there is also one on the other side) and my new buddy Yoda peeking out.  I thought he was a cute companion and was delighted, but, no....i found out there were treats. Then, I thought, oh, it must be really tiny candy. After figuring out that I had to pull off his head (poor Yoda), it turned out to be a USB stick. I must admit that I squealed. Popped it into the Surface, and it was full of delights to listen to: bbc broadcasts, Terry Pratchett. What a treat. I'm pretty spoiled.


 
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Select responses and comments.
  • (P): Do you find colouring soothing? Yes, I do. It is a good distraction. I loved colouring when camping under the trees on a beautiful fall day with the kids and friends, and so, it also brings back memory of community even when alone.
  • (D-old friend): I am trying to imagine you being a b**** . Is that going to be one of your firsts this month? (me) That was either great sarcasm or you haven't heard the big bad cop Jayne come out. I don't suffer fools gladly
  • (CJMS) How many rounds of chemo and radiation is your protocol? How long do you expect to be on treatment? Hugs. (Me): 25 radiation (5days per week), chemo one of those days., followed near end by brachytherapy treatments. Of course, likely plan it will shift based on responsiveness and health
  • (Qwerty): Glad it wasn't too difficult. Go to bed early. Get lots of rest. (Me): can't sleep for a while due to meds...but, will sleep well, i am sure. Watching John Wick with T, M, and K. Something odd about doing restful colouring, while watching a violent assassin movie.
  • (S): Know that we continue to travel with you and are sincerely interested in every word you print and every experience... (me): definitely filters on it, but will share what is reasonable. Other stuff can only be shared over a glass of wine.....so, we can have a laugh when done treatments.
  • @PilgrimsProgress Very informative, Jayne - you have a wonderful knack of making things seem straight forward and not so scary.......Warm towels, always a comfort! (me): PP, when I had my radiation mapping done, the guys placed a warm towel on me after I got on the table. It may be protocol, but it is protocol about caring for the patient. I felt immediately more relaxed. They talked to me about me. I wasn't one more body on a table to mark. We laughed. Talked about the mangos in goa, family and kids. As Qwerty said earlier professionals focused on the whole of you.
  • @ChemGal : Are you getting your veins stuck for every IV & blood draw? (me): es, I am. The lab work people have been great. We chat, the one has mickey mouse pins all down her employee badge lanyard. Even adults like mickey mouse. Some people require so much chemo that they have a line put in. Every person's treatment is so different.
Other posts:
  • (Friend who is Nurse Practicioner) Thanks for sharing you Journey of experiencing and managing cancer treatments. Seems you are going about it with Jayne type courage and determination. Most valuable for us health care providers . Offering prayers more courage and humour along the way

The comments that I have added from that time are shared, as they are part of expanding the experience whether via laughter or sharing how others were receiving the information at the time.
 
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