Coping

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Someone (@Waterfall ?) asked about coping strategies in my first thread. I've decided to start a thread on this. I'll likely add to it as I think of more ideas.

Today I had a great lunch with four other women who have also been getting cancer treatment. We met through a FB group and have a Messenger chat set up. Unfortunately, several women have died since we started it. Still, it's an excellent support.

Most of you know I worked in a profession where I helped others develop coping skills. Now I'm getting to put my money where my mouth is. While I'm sure I used these skills before, they are more important with a cancer diagnosis. For instance I have a whole new appreciation for "one day at a time".

When I was first diagnosed I used denial strategically. When I was waiting for the next step in the process, I lived my life as if nothing was wrong. I felt fine and normal so it worked. I suppose I still use denial strategically on occasion. It may not be denial but just living life and dealing with crossing bridges when they appear. There is no sense worrying about things in the future. Things we cannot control. That has worked fairly well for me.

Early in my diagnosis I decided to use my creativity for something other than making myself crazy. This is closely related to the previous strategy. There will be enough to worry about without creating more problems. I have a background of using cognitive behavioural therapy (CBT) and solution focussed therapy so this was probably a product of that background. A CBT concept is the notion of "catastrophizing". That's basically where you make a problem bigger than it needs to be. Of course it doesn't help. By committing to use my creativity well, I have managed to stay on a fairly even keel. Of course, I have had my moments where I've forgotten that. I will say, sewing bags or knitting sweaters is far more fun than worrying and catastrophizing. :)

I learned about Dialectical Behavioural Training (therapy?) just before I left work. While I don't remember all the concepts, a couple have been incredibly useful. The first is the concept of "Radical Acceptance". That is where you accept what you've been given. It doesn't mean you have to like it. The idea is that when you accept it you can respond better than if you waste energy resisting it. I can assure you I have not liked the cancer diagnosis. By accepting it, I could better deal with the information, treatment and whatever came my way. The second DBT concept is "Generous Assumptions" where you make a generous assumption about other people's behaviours. It might be something like believing the person who cut you off in traffic was busy rather than believing s/he is an a**hole. When I make generous assumptions I assume the health professionals I meet have my best interests at heart and they are competent. I trust until they give me reason to not trust. Fortunately, everyone I've met so far has lived up to that assumption. I'm very thankful to have met some great people.

Finally (for now) I decided to be my own advocate. I spent many years advocating for and supporting others. Now it was my turn. It has meant chasing down referrals or missing whatevers. It has meant speaking up where necessary. I've become more assertive (and outspoken) I'm sure. I've hopefully also become more empathetic and kind.

I just thought of another one. When I told people about my diagnosis they all asked to be kept informed of how I was doing. That was overwhelming. I understood why they were asking for that and appreciated their concern. Still, repeating difficult information over and over was tough. After much thought I decided to create a private FB group where I could give updates all at once. Of course the people closest to me got those updates in person or by phone. That group turned out to be a form of journalling for me and it also showed me I had a loving circle of support around me. I had prayers of all stripes and from all directions coming my way - Sikh, Jewish, all forms of Christian, Muslim, Pagan. Heck even the atheists did their part. It was much appreciated. My knitting buddies up north got together and knitting a blanket for me. I call it my knitted hug, and included the rest of my caring circle in that blanket hug.

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B was treated for three kinds of cancer from January to June of 2019 (the meningioma was treated by a single blast of radiation, the lymphoma in an eye muscle had 12 bouts of radiotion , and the active nodules in the middle lobe of her right lung were removed with the whole lobe). I was also in the process of getting a contract to come to Ontario and we were preparing our house for sale and working on all the usual moving tasks. We are currently waiting for scans to be done so we can move forward on treatment of another lymphoma while waiting for surgery regarding another growth and information about the nodules on her thyroid. She is almost finished a small travel or lap quilt for a niece and started work on a jacket. The cancer stuff casts a dark shadow but we can choose to focus on the light while acknowledging the shadow. Also, dealing with cancer is hard but living with the pain she started experiencing in February without knowing the cause was at least as hard.

The generous assumptions strategy helps in many kinds of situations. Staying focused on what is and being cautious with interpretations of what is help.
My goodness, hugs to you both.
 
I think somewhere in this thread you mentioned grief @Northwind. Can be such a big component and often unspoken.

I am curious - have you encountered 'the tyrany of the positive' in any of your encounters? ie others not tolerating a range of emotions? Have you found effective ways to manage through that?
 
We looked after B's mother for over 5 months after she was diagnosed with stage 4 colon cancer. She spent her last 6 weeks in hospitals. B was giving her her hydromorphone and fentanyl when she needed it. We still grieve losing her. Grief, the pain of loss or anticipated loss, is part of most traumatic events, and the pattern offered by Kubla Ross rarely fits. Any of the stages can happen at any time, and sometimes more than one at the same time. None of B's cancers have been immenently life threatening, just troublesome and worrisome. We do not know what the implications of the current discovery are yet. There have been many traumatic times in our lives so we have gotten used to living and progressing through trauma. Fortunately, we have alwars had each other for support along with friends and family.

Northwind's journey is probably a harder journey.
 
I think somewhere in this thread you mentioned grief @Northwind. Can be such a big component and often unspoken.

Yes. And grief in this case was several things, including my father's death last year, likely the changes retirement brings (good and bad) and of course loss of health.

I am curious - have you encountered 'the tyrany of the positive' in any of your encounters? ie others not tolerating a range of emotions? Have you found effective ways to manage through that?

A little bit at the beginning. I shut it down quickly.
 
Toxic positivity is another term I have heard.

Yup. So many people say you just have to be positive. Seriously??

People have told me I'm so positive. WTF does that mean? How does just accepting medical treatment qualify as positive? What is the alternative? In my experience most people take the treatment so by that definition most people are positive.

And then there's "you're so strong" That's a garbage statement. It also seems that the person saying it is othering the person they say it to and that's never good.
 
When faced with grief of any kind, it seems many people just don't what to say. So they say nothing or they say something foolish.

"I am sorry for your loss" or "I am sorry you are going through this" is usually the way to go.
 
I agree @paradox3

My grief reaction was private at home. Those responses are appropriate when you find out someone has been diagnosed with cancer or another illness too.
 
I have found, in times of loss or difficulty, that actual, paper, cards, feel very personal. It's a real physical expression of grief/comfort/understanding that someone made the effort to think of you, acquire a card, write on it, find a stamp, and post it.
 
What a strange selection criteria. The church I attended tended to give them to people who were grieving, seriously ill, after major surgery, undergoing difficult treatment etc.. . It wasn't particularly organised unfortunately, so some people in need didn't get thought of. I contributed shawls but didn't get one when three family members died in a short timeframe. My husband (never at church, or interested in church) got one after heart surgery. Not this second time round though. Someone shared her unhappiness about them in her congregation where, she claimed, it was mostly a popularity/status contest. Some people would be inundated with support and others totally ignored.
I think I must have said it wrong. My husband wouldn't really appreciate it at this time...He's happy to be on the prayer list, but wouldn't really appreciate a prayer shawl at this time. He's doing his best to live a normal and active life. There will be a time when he would appreciate it, and my church family will know that.
 
I think I must have said it wrong. My husband wouldn't really appreciate it at this time...He's happy to be on the prayer list, but wouldn't really appreciate a prayer shawl at this time. He's doing his best to live a normal and active life. There will be a time when he would appreciate it, and my church family will know that.

There is a very particular state of feeling that appears by times and not always compassionately or wisely because of the disposal of these things as wasted lightly ... something more to get entangled with as the theory goes (on entanglement, spinning, weaving, etc.)
 
There is a very particular state of feeling that appears by times and not always compassionately or wisely because of the disposal of these things as wasted lightly ... something more to get entangled with as the theory goes (on entanglement, spinning, weaving, etc.)

Please speak more clearly in this forum.
 
When Victoria Quilts arrived at my door with a quilt, I said something like "but I'm not that sick" .

The response was that all undergoing cancer treatments get a quilt

I found that as people sent items how appreciative that I was but also embarrassed by the generosity. It's hard to receive.
 
Masses are non receptive to maany things ... consider the process of unknowns! Thus the undoings of a mob ...

They need brute leaders ...
 
Sometimes, in order to cope, you need to have your questions answered. Yesterday my husband had a phone interview with our very busy radiology doctor. He is an incredible man who is definitely in the right field of work. He listened patiently and responded with real answers, even though some of them are tough answers that we have heard before but needed reminding. My husband felt heard. Also this doctor could have insisted that we see a GP, or one of the other doctors involved, but he listened, and ordered the appropriate test based on what he heard. My husband has been a little morose lately, maybe depressed, and I think it might be from all the worries/unknowns. After the phone appointment he was more himself.
 
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