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Pinga said:
Luce, I wonder after reading your post, if you think that we have left it in the hands of the professionals.
The professionals are part of the team, which includes family and friends trying to figure out what is going on, when it happened, what the patterns are, etc.
It is not something x-ray'd or tested, as the patterns shift.

So, yes, we work together.
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Pinga, I have trouble with many professionals ... not so with others. In one case a doctor tells me how I feel before I even say anything ... I worked with engineers who performed the same way. Some private deliberations are needed unless totally at a loss with your personal resources ... some are some aren't! They may have been impressed by knowing nothing ... due to the input from some professional prophet that is falsely benefiting!

One must question all pains ... everything that can cause ongoing learning ... about the naïveté of mortals ... in life and death it is an odd uncommon (non-hommeo genre) nature! Somewhat weird ... or almost out of here ...
 
Yes Pinga perfect places don't exist. May you find a good enough one that meets your dad's needs. He'll want to go home wherever he is placed, but a good placement should allow you some time for other things as well.
 
Yes, @crazyheart , very expensive.
LTC is $2500 approx. per month for private, which includes everything. There ae extremes though in quality for the price. We went to one which was fine, but, smelled of urine. Was tired. Nursing station was at end of hall, and people were gathered there, but there were also people in halls, in common areas, etc. Then went to another one, and there were about 20 residents "parked" at the entrance which is also the nursing station. Commom area was....tired. Lots of heavily medicated folks in wheelchairs. That one is coming off the list.

Then we went to a another one, which is part of a residential living complex, and is "memory care". The difference is huge, so is the price. We will pay approx. $4,000 for semi-private. Our hope is that they will accept him.
I will be able to get a good nights sleep knowing he is there. Our family will enjoy visiting him there.
He may die broke, but that is what his money is for, in my opinion.
 
Yup, hoping by the time he has to go somewhere else, he is less aware

Ps. private was upwards of 5000/month
 
It's certainly a huge amount of $$ for such care in RH setting. I agree - $$ is for using! So many save for the proverbial "rainy day" - missing the fact that NOW IT'S RAINING!!
 
Assisted care is very expensive here in Oz, too.

The reality is that, for many folks, they won't be able to leave a little to their kids - it will mainly go on end of life care.
It's become big business -I envisage a time, not too far away, when there will be building after building of housed folks with advanced dementia.

All one can do, is select the one that's both affordable and comfortable. The family was pleased with the one that Mum was in -it was run as a joint venture by the government, local council and The Uniting Church. This meant that some of the units were subsidised for those receiving welfare, which we thought was a fair thing.
 
Pinga when things settle I think your Dad would benefit from a music therapist. Someone to come in and play and sing for/with him.
 
PilgrimsProgress said:
Assisted care is very expensive here in Oz, too.

The reality is that, for many folks, they won't be able to leave a little to their kids - it will mainly go on end of life care.
It's become big business -I envisage a time, not too far away, when there will be building after building of housed folks with advanced dementia.

All one can do, is select the one that's both affordable and comfortable. The family was pleased with the one that Mum was in -it was run as a joint venture by the government, local council and The Uniting Church. This meant that some of the units were subsidised for those receiving welfare, which we thought was a fair thing.
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Once called a place of asylum ... until efficiency experts turned them loose on the streets ... it really is crazy "out there"!
 
I'm learning about delusion and dementia and lots of words related to both of those conditions. There is a lot to learn.
I have learned to live in the delusion with redirection.
Interesting to see the different staff's work with their own tool kit to handle behaviours, including interaction, meds and varous types of restraints.

I always thought that if you were in a location with continuous care, that it would help you if you needed other care. As it turns out, it doesn't in Ontario if moving from say apartment to residential living to long term care. Although the organization can shift people within beds in the same categorization, all new adminittances to a category are assigned based on a rating system from CCAC (community care action centre). It changed in 1993. So....had my father been in say, residential care at a great centre, and then had this crisis, he wouldn't have been much better off in finding a bed of his choice in LTC.
 
our LTC system in ON is a pretty big mess at the moment. CCAC is the gatekeeper now, at least in my area. They decide who's "capapble" to decide to go or not - their assessment process (seriously lacking IMO) disregards information from the rest of a person's treatment team - I know, it sounds unbelievable, but that's what's happening. Beds are full 100% of the time - so facilities pick & choose who to admit - many people who have the behavioural difficulties associated with dementia are declined, and may stay endlessly in hospital - not the right setting for them, but no alternatives. I do get it that we are underfunding the LTC facilities - staffing is limited, resources are scarce to train and support them to provide necessary skilled care to these complex folk. It is very sad for all involved, IMO.

Use of restraints is another whole ball game.
 
@Carolla, we may be lucky at CMH, but it does appear that at least the ranking/rating is done closely with the CCAC and the geriatric care team. On the other hand, that could be due to being in the hospital. They really listened and couched the documents based on the team's analysis of the systems. Now, how those rankings will play out with actually getting a bed, competing with other hospitals rankings of their patients...etc, we shall see.

Would love to hear your view on chemical and physical restraints -- maybe in the elder caee thread.
 
I think the place you've selected pinga is a retirement home, not LTC facility - so the application process is different & usually much easier. As those are privately operated and not subsidized, CCAC is not the gatekeeper for admissions to RH. Crossing my fingers and offering prayers for settlement for your dad ASAP.
 
Anywhere I have worked from LTC, retirement, and Complex Care.......restraints are a very last resort. In fact I almost lost a job for refusing to put a restraint on an elderly woman in a wheelchair. It was addressed and a better alternative was found. I am not a fan of any kind of restraint in these places.
 
How is something like HAE dealt with when one has dementia, especially if restraints are being used? To people tend to believe someone is having an attack?
 
ChemGal said:
How is something like HAE dealt with when one has dementia, especially if restraints are being used? To people tend to believe someone is having an attack?
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I have never dealt with HAE, but in other cases I notice agitiation levels increase even more when people are "tied down", which could and has led to strangulations and other injuries.
 
There are special chairs similar to a recliner that are easy to get into but designed so the elderly can't get out ie stand up without help. I've seen them at vendor shows. Anyone seen them in use?
 
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