Recent content by DaisyJane

That isn't what she said, that's what you heard. There is a difference. You seem upset if we acknowledge the challenges in your life and equally upset when we don't. If we fail to fully agree with you there is a sense that you take it a personal attack, and an attack on people with...

Kimmio. You're being unfair. And you're bullying those with whom you disagree. Pinga asked a reasonable question about advanced directives and you responded by attacking her. One of the grounds rules of safe space conversations is that you engage ideas, not attack people.

"It’s not reasonable to do it in advance." I'm curious why you state this. For people who are capable of making pre-determined decisions about QOL I think this very appropriate. We also need to remember that people can, and should be encouraged to, modify their predetermined decisions about...

There's a lot to unpack Kimmio, but I will try. 1) You seem to think that I have some level of power that I do not. While it is true that I now have a voice in the discussion, I spent years as a graduate student being told by able-bodied male academics that I didn't know what I was talking...

Please don't suggest that you have any inkling of what my experiences are, or have been. For someone so concerned with assumptions driving ethical discussions I would strongly suggest you check yours.

This isn't always about loving your future disabled self. Sometimes it is about determining what constitutes suffering and placing boundaries. Kimmio, you are rightly concerned about making sure all voices are heard. Which means that you need to allow all voices to be heard, not just yours.

Okay, got it. I somehow worried that my post suggested that your life was less sacred which made me concerned.

Actually I'm back for a second - responding to Kimmio's suggestion that I am speaking to matters to which I have no right to speak. First, I have EVERY right to make the points I am making. I have spent years being told my voice - as a mother - did not matter. I have years of hard-won...

Sorry Bette. Did I miss something? I am sorry if I offended you. I haven't read the whole thread. You are most certainly sacred.

And with that, I'm outta here.

I have recently learned the hard way that death may not be as peaceful as we wish it would be. So, yes, sometimes that extra step is necessary.

I must also say that I agree with Pinga's statement. There is a significant difference between intellectual disability and progressive dementia.

For what its worth I will jump in. I haven't followed this thread in detail, and I don't plan to go back and read everything. I also understand where Kimmio is coming from. But I do not believe it is ableist if people place parameters on their suffering. Dementia is a terminal illness...

Ah Pinga. I have missed you here, but I chat with you on FB so I have always felt that our relationship continued beyond WC2. I appreciate the bit about coming and going. While I never had the role you did in WC/WC2 I was an active poster for many years. I have pulled back off and on over the...

I have always been fairly open about our life with Matthew here on WC2, and previously on WC. Matthew had a rough winter and died of complications of a respiratory infection early Sunday morning (not COVID). Here is a copy of his obituary. I have removed some confidential information - but...