Coping

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Someone (@Waterfall ?) asked about coping strategies in my first thread. I've decided to start a thread on this. I'll likely add to it as I think of more ideas.

Today I had a great lunch with four other women who have also been getting cancer treatment. We met through a FB group and have a Messenger chat set up. Unfortunately, several women have died since we started it. Still, it's an excellent support.

Most of you know I worked in a profession where I helped others develop coping skills. Now I'm getting to put my money where my mouth is. While I'm sure I used these skills before, they are more important with a cancer diagnosis. For instance I have a whole new appreciation for "one day at a time".

When I was first diagnosed I used denial strategically. When I was waiting for the next step in the process, I lived my life as if nothing was wrong. I felt fine and normal so it worked. I suppose I still use denial strategically on occasion. It may not be denial but just living life and dealing with crossing bridges when they appear. There is no sense worrying about things in the future. Things we cannot control. That has worked fairly well for me.

Early in my diagnosis I decided to use my creativity for something other than making myself crazy. This is closely related to the previous strategy. There will be enough to worry about without creating more problems. I have a background of using cognitive behavioural therapy (CBT) and solution focussed therapy so this was probably a product of that background. A CBT concept is the notion of "catastrophizing". That's basically where you make a problem bigger than it needs to be. Of course it doesn't help. By committing to use my creativity well, I have managed to stay on a fairly even keel. Of course, I have had my moments where I've forgotten that. I will say, sewing bags or knitting sweaters is far more fun than worrying and catastrophizing. :)

I learned about Dialectical Behavioural Training (therapy?) just before I left work. While I don't remember all the concepts, a couple have been incredibly useful. The first is the concept of "Radical Acceptance". That is where you accept what you've been given. It doesn't mean you have to like it. The idea is that when you accept it you can respond better than if you waste energy resisting it. I can assure you I have not liked the cancer diagnosis. By accepting it, I could better deal with the information, treatment and whatever came my way. The second DBT concept is "Generous Assumptions" where you make a generous assumption about other people's behaviours. It might be something like believing the person who cut you off in traffic was busy rather than believing s/he is an a**hole. When I make generous assumptions I assume the health professionals I meet have my best interests at heart and they are competent. I trust until they give me reason to not trust. Fortunately, everyone I've met so far has lived up to that assumption. I'm very thankful to have met some great people.

Finally (for now) I decided to be my own advocate. I spent many years advocating for and supporting others. Now it was my turn. It has meant chasing down referrals or missing whatevers. It has meant speaking up where necessary. I've become more assertive (and outspoken) I'm sure. I've hopefully also become more empathetic and kind.

I just thought of another one. When I told people about my diagnosis they all asked to be kept informed of how I was doing. That was overwhelming. I understood why they were asking for that and appreciated their concern. Still, repeating difficult information over and over was tough. After much thought I decided to create a private FB group where I could give updates all at once. Of course the people closest to me got those updates in person or by phone. That group turned out to be a form of journalling for me and it also showed me I had a loving circle of support around me. I had prayers of all stripes and from all directions coming my way - Sikh, Jewish, all forms of Christian, Muslim, Pagan. Heck even the atheists did their part. It was much appreciated. My knitting buddies up north got together and knitting a blanket for me. I call it my knitted hug, and included the rest of my caring circle in that blanket hug.

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I love the knitted hug name for your blanket, it's beautiful!
My older sister, who died from breast and ovarian cancer at 57, used to say sometimes she just needed "Jesus with skin on", I took that to mean she needed her friends in that moment, to get through some days.
Your coping skills are eye opening and probably could be applied in many areas of life.
 
Your coping skills are eye opening and probably could be applied in many areas of life.

Thanks. I agree. They were staples in addiction treatment. I'm sure I've been using them for awhile. A cancer diagnosis tunes them up.

It was an excellent exercise to ponder what coping skills I use. I bet you have your own toolbox that works well.
 
Thanks. I agree. They were staples in addiction treatment. I'm sure I've been using them for awhile. A cancer diagnosis tunes them up.

It was an excellent exercise to ponder what coping skills I use. I bet you have your own toolbox that works well.
Well sometimes I do...always good to have new ideas and strategies though. When all else fails, sometimes just a good cry.
Curious, how is your husband coping with all of this?
I've often wondered how my sister coped at night throughout her journey, she was divorced and at night crawled into bed alone. I do know she talked to God often.
 
Well sometimes I do...always good to have new ideas and strategies though. When all else fails, sometimes just a good cry.

That's true. I've had a few. I had a relatively small stressor this summer that triggered a really ugly cry. My husband likely thought I was losing my mind. I had no control over it. I think the stressor triggered some grief stuff that had to be released. I needed that.

Curious, how is your husband coping with all of this?
He seems to be okay. He talked to another husband at the beginning of this and that helped. It also helps that I am doing well.

I've often wondered how my sister coped at night throughout her journey, she was divorced and at night crawled into bed alone. I do know she talked to God often.

Being alone would be tough. My husband has been a rock star supporter. I can't imagine what it would be like without someone like him.
 
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My husband leans on me to do the communication of updates. I'm glad to help, but sometimes I find it draining. He comes from a family of 9 siblings. Plus he has several friends he wants me to keep updated. Plus our kids and my family. I think he has done the radical acceptance thing. He jokes about 'still being here' sometimes, because the expert doctor didn't give out a whole lot of hope. He got a very mild case of covid while I really suffered...so somehow, his body is working hard to be well. Cancer is horrible, but I am seeing a new strength in my husband that surprises me.
 
I have been in the spousal support role before, but the tumour in question turned out to be benign and probably not worth the amount of worrying we did over it. Still rather nerve-wracking until we knew, and we also had a kid in kindergarten that I had to take care of while she was in the hospital.

The fun, and funny part: I was in recovery waiting for them to settle her in her room and one of her nurses came over to say hi. It was my boss' wife. I knew she worked at that hospital but didn't know which ward. That was rather comforting, having someone I know involved in her care.
 
He jokes about 'still being here' sometimes

Dark humour is another good (or interesting?) coping skill. I was in a community production of Spamalot a few years ago. My line is "I'm not dead yet" :cool:

turned out to be benign and probably not worth the amount of worrying we did over it

Is anything ever worth the worry? My wise Irish great-uncle used to say there was no point in worrying. If you can't do anything about it do something else. If you can do something about it do it. Wise words

P.S. I love the knitted hug. Isn't it great that we can find many ways to show our caring?

I think a blanket of some variety is an excellent gift for someone with cancer or another illness. This was especially lovely because everyone in the group contributed. The woman who organized the project chased people down to get it done. Apparently it was knit at the library, in the bar, at home...... so cool.

Have you heard of Victoria's Quilts and did your husband receive one?
 
Dark humour is another good (or interesting?) coping skill.
Oh yeah. If i ever start cracking awful jokes about death and dying, start worrying. Mortality is a perpetual source of humour in my world.

I was in a community production of Spamalot a few years ago. My line is "I'm not dead yet"
"Run away, run away" was practically a war cry in my D&D days, along with that one. Of course, Spamalot did not exist yet. We were referencing the original movie.
 
I am familiar with some of the strategies of both CBT and DBT from my days of working in mental health. I even considered doing a CBT certificate program at one point but I decided to retire instead.

There are some useful & teachable skills involved. Definitely. Some of it always seemed to me like jazzing up commonsense principles though.

The support of friends and family is key. I love the knitted hug!
 
No, my husband hasn't received a quilt or blanket, but he is on my church's prayer list and when/if he deteriorates, they give prayer shawls. I have mixed feelings though....As long as he doesn't get one, I can fool myself into believing all is normal.
 
No, my husband hasn't received a quilt or blanket, but he is on my church's prayer list and when/if he deteriorates, they give prayer shawls. I have mixed feelings though....As long as he doesn't get one, I can fool myself into believing all is normal.
Oh dear it sounds like this prayer shawl ministry is missing its mark somehow. They only give out the shawls to those whose health deteriorates enough? Seems kind of grisly to me.
 
No, my husband hasn't received a quilt or blanket, but he is on my church's prayer list and when/if he deteriorates, they give prayer shawls. I have mixed feelings though....As long as he doesn't get one, I can fool myself into believing all is normal.

I received a prayer shawl from a clergy friend while I was getting chemo. It was much appreciated. I wouldn't want one merely because I had gotten worse.

Victoria's Quilts is a great service. You can request a quilt for anyone receiving cancer treatment. They will receive one for free. I am happy to request one if you want. PM me to discuss if you're interested.

Victoria's Quilts

Oh dear it sounds like this prayer shawl ministry is missing its mark somehow. They only give out the shawls to those whose health deteriorates enough? Seems kind of grisly to me.

I agree. Prayer shawls are to offer comfort and not dependent on severity of the illness or challenge.
 
Just checked the spelling of the word "grisly" and thought of our old friend Crazyheart with her word games.

She would have liked the trio grisly, gristly and grizzly, don't you think?

There is also a rap artist who goes by Tee Grizzley. Who knew?
 
No, my husband hasn't received a quilt or blanket, but he is on my church's prayer list and when/if he deteriorates, they give prayer shawls. I have mixed feelings though....As long as he doesn't get one, I can fool myself into believing all is normal.
What a strange selection criteria. The church I attended tended to give them to people who were grieving, seriously ill, after major surgery, undergoing difficult treatment etc.. . It wasn't particularly organised unfortunately, so some people in need didn't get thought of. I contributed shawls but didn't get one when three family members died in a short timeframe. My husband (never at church, or interested in church) got one after heart surgery. Not this second time round though. Someone shared her unhappiness about them in her congregation where, she claimed, it was mostly a popularity/status contest. Some people would be inundated with support and others totally ignored.
 
Unfortunately I have heard of problems with prayer shawl ministries. Overly organized or not organized enough. Too many shawls or not enough of them, etc.

What to do if someone is in need for a second or third time comes up fairly often, from what I hear.

It's too bad because it is usually a grass roots initiative with good intentions.
 
B was treated for three kinds of cancer from January to June of 2019 (the meningioma was treated by a single blast of radiation, the lymphoma in an eye muscle had 12 bouts of radiotion , and the active nodules in the middle lobe of her right lung were removed with the whole lobe). I was also in the process of getting a contract to come to Ontario and we were preparing our house for sale and working on all the usual moving tasks. We are currently waiting for scans to be done so we can move forward on treatment of another lymphoma while waiting for surgery regarding another growth and information about the nodules on her thyroid. She is almost finished a small travel or lap quilt for a niece and started work on a jacket. The cancer stuff casts a dark shadow but we can choose to focus on the light while acknowledging the shadow. Also, dealing with cancer is hard but living with the pain she started experiencing in February without knowing the cause was at least as hard.

The generous assumptions strategy helps in many kinds of situations. Staying focused on what is and being cautious with interpretations of what is help.
 
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