It seems I am, once again, late to the party. However, I am very interested in the response to this decision and will go back and read the thread in its entirety. Those who know me on FB know I posted my reaction as the mother of a child with profound disabilities. For the sake of adding another perspective here it is:
Words from the mother of a child with profound disabilities and complex medical issues:
I applaud this decision for many reasons. And while I could write a post on the subject long enough to rival my last comprehensive paper of 47 pages, I will try to keep this brief.
1) This decision only effects adults who are competent. It does not include children or people unable to consent. This decision does not threaten my child's life or quality of life in any way. As I understand it does not threaten the life of anyone living with a disability. People living with disabilities who are competent to make decisions about their life/death should not be treated any differently than able bodied people competent to make decisions about their life/death.
2) Disability is not the same as suffering. Certainly disability can be linked to suffering and to ignore this fact dishonours those who suffer. But, this decision is about suffering NOT disability. Some people equate disability and loss of independence as a form of suffering and as long as they are competent, we need to respect their opinions, and allow them the right to decide how to live, and die. As the courts declared, we cannot require a "duty to live" when that life is seen as unbearable by the person living it. Many people with disabilities live full, rich, lives and this decision does not, in any way, threaten their lives or well-being. In fact, I hope this decision opens the floodgates for conversations that allow us to better parse the distinction between suffering and disability. It could be a very good thing.
3) As I understand, the slippery slope argument has not been demonstrated in existing countries with right-to-die legislation.
4) The medical community already allows infants born with significant disabilities, illnesses, and so on, to die. This is not new. We were asked on two occasions whether we wished to allow Matthew to die. This decision might place such conversations in a more open and transparent light, and allow death to be addressed in a more humane fashion in those rare situations where it is seen as inevitable, or appropriate.
5) Death is a fact of life. Conversations that encourage us to think about life, death, and dying, while difficult, threatening, and frightening, can actually encourage us to think more about quality of life, and how we define such a thing. This decision has the power to shift our communal focus from death and fear, to life and living. Again, a good thing.