Northwind's health updates

Welcome to Wondercafe2!

A community where we discuss, share, and have some fun together. Join today and become a part of it!

Northwind

Still knitting. Walking the path to health.
Messages
10,296
Reaction score
4,075
So I'm on this roller coaster ride. I didn't sign up for this. I thought I would have heard from the MRI booking people by now. The referral was sent over pm Thursday morning. Even knowing there's an appointment in the works would be helpful right now f***
 

DaisyJane

I probably should be working.
Messages
1,411
Reaction score
1,401
Wish I could do something to make it less stressful.

Thinking of you.
 

Northwind

Still knitting. Walking the path to health.
Messages
10,296
Reaction score
4,075
It feels like I'm in a void of not knowing. It sucks
 

Carolla

wondering & wandering
Messages
7,637
Reaction score
5,076
Waiting is the worst. It does seem like scheduling should be a faster, smoother process. Once we know final details and treatment plan becomes clear, I think life somehow feels a smidge more predictable. Glad your weather is at least improving for your wonderful daily walks - waiting for spring is a different thing entirely.
 

Northwind

Still knitting. Walking the path to health.
Messages
10,296
Reaction score
4,075
I'm going to connect with the surgeon's office tomorrow. I suspect the MRI info isn't the most important at this stage. I think it is more for the surgery decisions
 

ChemGal

One with keen eye
Messages
12,361
Reaction score
3,189
I'm going to connect with the surgeon's office tomorrow. I suspect the MRI info isn't the most important at this stage. I think it is more for the surgery decisions
Have you been tested for any of the associated genes or your family? Probably won't affect immediate decisions, but possibly ones further down the line.
 

Northwind

Still knitting. Walking the path to health.
Messages
10,296
Reaction score
4,075
I asked him about genetic testing. He said that wasn't available. I wonder if I asked in a way that he misunderstood. I thought there was such testing, especially for breast cancer
 

ChemGal

One with keen eye
Messages
12,361
Reaction score
3,189
I asked him about genetic testing. He said that wasn't available. I wonder if I asked in a way that he misunderstood. I thought there was such testing, especially for breast cancer
Yeah, there certainly is. Maybe too much detail for the surgeon to discuss right now? It may be worthwhile asking a GP, I think the testing can take a while.
 

Northwind

Still knitting. Walking the path to health.
Messages
10,296
Reaction score
4,075
I imagine it was partly because there are more important issues at this point. I will ask another time. Do you have suggestions on what specifically to ask for?
 

ChemGal

One with keen eye
Messages
12,361
Reaction score
3,189
I imagine it was partly because there are more important issues at this point. I will ask another time. Do you have suggestions on what specifically to ask for?
Genetics is such a fast paced field, it's not something I'm up to date on. The ideal would be to see a genetic counsellor, but no idea what those types of wait times are like.
 

Northwind

Still knitting. Walking the path to health.
Messages
10,296
Reaction score
4,075
Thanks. I'll follow up when the dust settles
 

ChemGal

One with keen eye
Messages
12,361
Reaction score
3,189
Thanks. I'll follow up when the dust settles
Wish I knew more. Off the top of my head all I recall is there is more than BCRA1/2. I wouldn't be surprised if more genes are known than when I last read into it.
 

Mrs.Anteater

Just keep going....
Messages
4,184
Reaction score
2,047
You could call the. MRI place and have yourself put an the cancelation list? That way, you find out if the referral got there or was missed.
 

ninjafaery

I just am
Messages
2,086
Reaction score
404
Waiting with you...hope you hear back today. I like Mrs Anteater's idea to call. At least you might get more info.
At any rate, hope everything falls into place quickly.
 

Northwind

Still knitting. Walking the path to health.
Messages
10,296
Reaction score
4,075
I did call the MRI booking and left a message. I'll call again today. I suspect it will be hard to get through to a real person
 
Top