Long Term Care

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Nancy

Well-Known Member
We all know that the Long Term Care system in Canada has been crumbling. Let me tell you our experience with our Mom. When I brought her to the Geriatric Clinic last November, the doctor was quite adamant that she be put on the waiting list for Long Term Care. My sisters weren't ready to do that, so we had a tense few weeks until I just decided to go with the flow. This spring, they decided it was time. But, of course, there is a process. The process involves getting home care 6 days a week. Mom needs various aspects of care from 7:00 a.m. in the morning until 10:00 p.m. at night...eye drops, meals, bath, laundry, meds, exercise, severe hemorrhoid care, doctor/specialist/eye doctor visits. She is legally blind and has no memory or recognition of who she should know or not know. Which is dangerous when she is alone in the house and someone knocks on the door. Home care decided that they will come 6 days a week for anywhere between half an hour to almost two hours. It is never the same time, and rarely the same person. They call my sister at work to find out what to do although she has told them not to call her at work. She has left ample instruction. They once came at 8:00 to give Mom a bath, and they said they were scheduled for half an hour. Mom gets up at 9:00. A friend, who is a retired PSW, comes two days a week to do lunches with mom; otherwise it is my sisters or me. When the sister Mom lives with goes away (three times so far this summer), my other sister moves in with Mom...leaving her family of 6 to their own devices, and going home to a lot of catch-up work. I am dealing with health concerns. The 'people I live with' (which is how Mom refers to her youngest daughter and her husband) both work full-time. My brother-in-law has cancer too. As does my husband.

The powers that be have decided a few times that Mom is not in immediate need of long term placement. We have been doing a good job, and are trying to be pre-emptive as we foresee a time we might not be able to do such a good job. Her name has been put on a list just recently, but .... maybe a year long wait. She can afford a private room so that might speed things up a bit. (Yay for selling the farm!)

I listened to the news last night where the state of long term care was being discussed...especially how those who would have more easily got in a few years ago, are now on long wait-lists.

So...just thought I'd let everyone know what some of us are facing when we are trying to do the best for our loved ones, while also taking care of ourselves.
 
We have already decided that home care is our preferred option. We have a nice kettle of cash in our investment accounts so my PoA requests that be used for home care for as long as possible before LTC is even considered. I know there are some good, reliable homes and operators out there (my employer partners with several of them) but getting into them is extremely difficult since everybody and their sibling is on the wait list for the good ones. But I have worked in home care long enough to know that family-funded care (as the provincial association calls it) is very much an option that could keep us in our own home a lot longer. And it is the norm in China still so is Mrs. M's preference. They just hire someone, basically what we would call a Home Support Worker (HSW as opposed to a registered PSW) full-time to look after aging parents or even themselves.
 
Mom has paid room and board at my sister's for 24 years. Currently, her needs are interfering with the lives of the other 4 people who live there. e.g. She spends hours in the bathroom; she leaves unsanitary messes behind her in different rooms of the house. I know this sounds awful, but even home care has become another challenge to work around.
 
Home care is not simple. To do 7x24 care, especially if someone is at risk to self or others is not feasible in home or a seniors residence.

To be safe often requires multiple staff

It can happen for a bit..

I am sorry that the family didn't decide to put name on list.

I am also aware of how exhausting it is for caregivers who strive to keep their spouse at home. Exhausting and at times dangerous
 
My Jangmonim lives with us, and the arrangement works well. She has her own bedroom and bathroom and the run of the place, though she never comes into the master bedroom and bathroom.

Mon-Sat she goes to a Senior's Center around 8 am, and returns home around 5 pm. The Center gives her all her meals. On Sundays, her oldest son comes to spend time with her while my Yobo and I go to church
 
My Jangmonim lives with us, and the arrangement works well. She has her own bedroom and bathroom and the run of the place, though she never comes into the master bedroom and bathroom.

Mon-Sat she goes to a Senior's Center around 8 am, and returns home around 5 pm. The Center gives her all her meals. On Sundays, her oldest son comes to spend time with her while my Yobo and I go to church
Wife's parents still had their own place until they both passed a few years ago but had a maid/home support to help take care of it and my brother-in-law, a physician by training, lived walking distance away.
 
Grrr…so frustrating. We never know if the PSWs have been in or not. They don’t record in the communication book and mom can’t remember. Has she had her eye drops and exercises or not? So I bring her lunch and do everything anyway. Bathday, they show up late and we’ve already given it to her. Sister she lives with is going to an out of town wedding. Sister who usually stays with mom is handicapped by a sore back. I’m helping with a newborn. So…we were afraid this day would come. We are trying to figure out what to do with mom when we can’t care for her. No beds available in respite.
 
We have had PSW's involved in the care of family members. There are many frustrations with scheduling, etc.

On the other hand, having worked in home care myself, I know the unpredictable nature of client care. Transportation and parking issues complicate things further.

In Toronto, many PSW's rely on public transportation. It must be an absolute nightmare getting around.
 
Ageism ... is is economically undesirable to the business orientation! This is a contaminant is some ideals ... corruption of power as the head is built up ... esteem? We must get through it ... the passages are sometime weird ...

Gail Sheehy wrote on it ... a complex text! (Passages) It also deals with proxemics ...
 
Why, P3? Toronto has the best public transit system in Canada
No matter how good the system, it is more time consuming to travel by bus from client to client throughout the day. Driving is more cost efficient when you have a job that pays you on a per visit basis.

The only exception would be a small territory with a high concentration of condos and apartment buildings. In such a case, walking would probably work out okay.

In a typical suburban setting, you have not only your time on the bus (or two) but walking to the bus stop (s)and waiting for the bus(es).

This almost seems like a silly question Brother @Jae. But I appreciate it might be hard to imagine the realities of doing home health care if you have never done such a job.
 
@Nancy Also, just a little note to empathize with the challenges of scheduling support / care for your parent.
Not easy. Hoping you all can "lean into love" in these times, finding patience and tapping on creativity. Is there anyone in your church circles that could be hired as a "visitor" as compared to a PSW for these times?
 
No matter how good the system, it is more time consuming to travel by bus from client to client throughout the day. Driving is more cost efficient when you have a job that pays you on a per visit basis.

The only exception would be a small territory with a high concentration of condos and apartment buildings. In such a case, walking would probably work out okay.

In a typical suburban setting, you have not only your time on the bus (or two) but walking to the bus stop (s)and waiting for the bus(es).

This almost seems like a silly question Brother @Jae. But I appreciate it might be hard to imagine the realities of doing home health care if you have never done such a job.
I've never done home health care, P3, you're right. However, I do have plenty of experience over the past 4 years moving from workplace to workplace (to workplace...) each day. I teach executives at their offices. Public transit has worked very successfully for me. No car required
 
I've never done home health care, P3, you're right. However, I do have plenty of experience over the past 4 years moving from workplace to workplace (to workplace...) each day. I teach executives at their offices. Public transit has worked very successfully for me. No car required
How is your travel time paid though? That is a factor here.
 
Rather than engaging further in the relative merits or challenges of public transit in this thread, can I suggest that folks take it to another thread?

I have created this thread for that dialogue if you so desire: Public Transit -- the good, the bad, the ugly
No thanks. We are specifically talking about using public transit as a home care worker
.
Others might enjoy a more general discussion, of course.
 
How is your travel time paid though? That is a factor here.
In most cases, I just pay it. One company I work at does give me monthly free passes to ride on their shuttle busses, but I've never used them due to the times at which they travel
 
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