2022/12/16: Going from a bit of anxiety to "wtf"

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Remember my "hey, things must be good as my CT scan review is scheduled out, and my internal was good". We were invited to our first social out since COVID -- a potluck dinner, and was super excited to be going.

On Friday, Dec 16th, I received a call from the hospital clinic that I was booked for a cystoscopy on Friday, December 23rd with the urologist.
I got off the phone, looked up cystoscopy Cystoscopy - Mayo Clinic, and then started to stress.

I phoned my doctor to say "hey what's going on"
The timing of it being right after the CT scan results would have come in was not lost to me.

Holy **** batman. Dang. Deep breathe

With no doctor call back, I did my best to compartmentalize it.

Kept my stress level down, and went old school to the potluck - my spouse's idea with Diana sauce and purchased meatballs.
The person whose house it was at is a very good friend and was aware of my anxiety. She laughed and supported it.
(ps. there were some picky eaters who also loved it).

I had my doctor's appt for the results of the CT scan on Tuesday, the 21st .......at which point he told me he had heard about my anxious call, apologized for not calling back, but, that my referral to urologist had happened at the end of October. The timing of the appointment was purely a coincidence. sigh. I choose to believe him.


Now, why does my anxiety go up when I start to get referrals for bladder issues.
A good friend of mine was diagnoses with cervix cancer just over one year ahead of me in 2014. Her treatments were different. Her staging was different. Her type was different. I know that. She was a huge support while I was going through treatments. Shortly after I finished mine, her cancer was suspected & confirmed as back by a cystoscope, in her uretor, and after much testing, issues, challenges, she ended up with full bladder removal, plus lots of other items. She died in March 2017.

so.....I am aware of the potentials that exist, and will NOT let them run my life, but...I am also not stupid. Tests are important.

wtf.png
 
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Not having enough solid information is the worst. No wonder you feel anxious.
I don't have much to offer here, but I'm wishing all the best for you.
 
Worrisome indeed JayneWonders. Sometimes it seems like all we can do is Carry On!
I am waiting to hear what (if anything) happens next with my lung fungus problem. 6 months of expensive medication hasn't brought any significant improvement.
 
Not having enough solid information is the worst. No wonder you feel anxious.
I don't have much to offer here, but I'm wishing all the best for you.
Hi Ninj.
I will write more later this week. Some tests have come and gone and i am ok
 
I have the basic information. A CT showed almost no improvement in the fungal invasion. What is lacking is a solid plan for going forward. Various specialists are discussing this weird and unusual situation.
 
I have the basic information. A CT showed almost no improvement in the fungal invasion. What is lacking is a solid plan for going forward. Various specialists are discussing this weird and unusual situation.

That is rough @KayTheCurler. I hope that a plan comes forward. Part of my ongoing exploration is to see a respirologist. (More info to follow).

I shudder each time you say fungal invasion as I am watching Last of Us. It's a dystopia following a pandemic caused by fungus
 
I have the basic information. A CT showed almost no improvement in the fungal invasion. What is lacking is a solid plan for going forward. Various specialists are discussing this weird and unusual situation.

That has been going on for awhile. How frustrating. I hope your team finds answers soon. More importantly, a solution.
 
That is rough @KayTheCurler. I hope that a plan comes forward. Part of my ongoing exploration is to see a respirologist. (More info to follow).

I hope things go well for you. I hope some scarier possibilities have been ruled out.

I shudder each time you say fungal invasion as I am watching Last of Us. It's a dystopia following a pandemic caused by fungus

That one has tempted me. I may need to pass......
 
I have the basic information. A CT showed almost no improvement in the fungal invasion. What is lacking is a solid plan for going forward. Various specialists are discussing this weird and unusual situation.
Really sorry they didn't work. Antifungals aren't as easy as antibiotics. Hugs.
 
And all of this was right before Xmas too @JayneWonders .... that timing sucks. And having people within your sphere who've had similar dx - always a challenge. Glad other results are looking less worriesome.

Yup some of those fungi are persistent little creatures! Hoping plan will reveal itself soon @KayTheCurler. I am absolutely NOT watching Last of Us!!!!
 
Thanks for the verbal hugs. Seems all I can do is wait while the experts try to figure out what is going on. Trouble is that the 'thing' shows upon x rays and scans - and is suggestive of cancer. Biopsies prove it isn't cancer but a fungus. If I have a fungal infection I should be losing weight and running a fever - I'm not! The docs I deal with seem to be seeking further info. Incidentally, there was a segment on CBC radio this morning about growing numbers of fungal infections that aren't getting killed by the available meds. Patience is required!
 
I can't help thinking that it would be nice to sometimes have a medical situation that is easy to diagnose and treat! It took 12 hours in the ER to confirm that I was experiencing AFib. The good thing about this is the doc was very aware of women being dismissed with heart problems because they weren't typical.
 
I can't help thinking that it would be nice to sometimes have a medical situation that is easy to diagnose and treat! It took 12 hours in the ER to confirm that I was experiencing AFib. The good thing about this is the doc was very aware of women being dismissed with heart problems because they weren't typical.
I get that. The unknowns with a health condition throw in extra difficulties.
 
I listened to the same program. It was very scary. I hope the development of targeted antibodies goes well and quickly. My thoughts and prayers are definitely with you Kay the Curler.
 
I listened to the same program. It was very scary. I hope the development of targeted antibodies goes well and quickly. My thoughts and prayers are definitely with you Kay the Curler.
Good to stay aware of such things I suppose. CBC feeds me lots of information on various topics. I don't think that the fungus I have is exactly what they were talking about, but it does sometimes refuse to die with the available treatment..
 
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