Son diagnosed with Tourette's Syndrome

[Boots]

Thanks.

 

[Lastpointe]

I hope your son has been reaching out for support to Tourette’s groups. I have a friend whose son also has Tourette’s though diagnosed as a young teen so I suspect he had much more obvious tics

With medication and understanding he is now 20’s and doing well. When I talk to him there are no obvious tics and he has learned cope and joke about it

Good luck. It’s a big thing to get a diagnosis of anything long term, especially when you are young and vulnerable

 

[Boots]

I hope your son has been reaching out for support to Tourette’s groups. I have a friend whose son also has Tourette’s though diagnosed as a young teen so I suspect he had much more obvious tics

With medication and understanding he is now 20’s and doing well. When I talk to him there are no obvious tics and he has learned cope and joke about it

Good luck. It’s a big thing to get a diagnosis of anything long term, especially when you are young and vulnerable

My son (from my understanding) has not seeked out support groups. He still doesn't want people to know.

He has always been a very private and serious child.

I think it will be a long time before he is okay to joke about it. We have increased his meds and one of his vocal tics is gone, and a couple of his motor tics have settled down.

 

[Carolla]

Good to hear he's responding well to the meds - does that put you a bit more at ease? Teens often don't want to be seen 'different' - even as they struggle to separate themselves from their childhood & family identities & create themselves as unique individuals. So I can see how he might not yet want to seek out support groups - perhaps he's looking at stuff onlline, unknown to you and undiscussed. It's hard as a parent to be feeling both the pull and push of life with teens - but I'm glad you're finding ways to respect his need for privacy - so crucial to that relationship with him. Hang in there Boots!

 

[Boots]

Good to hear he's responding well to the meds - does that put you a bit more at ease? Teens often don't want to be seen 'different' - even as they struggle to separate themselves from their childhood & family identities & create themselves as unique individuals. So I can see how he might not yet want to seek out support groups - perhaps he's looking at stuff onlline, unknown to you and undiscussed. It's hard as a parent to be feeling both the pull and push of life with teens - but I'm glad you're finding ways to respect his need for privacy - so crucial to that relationship with him. Hang in there Boots!

The meds are putting him at ease at that is what is important. As far as I go....I don't know. I don't like being on medication.

I have been sending him links to you tube videos and also the link to Tourette Canada. Whether or not he has accessed them I don't know.

 

[ChemGal]

@Boots one thing to keep in mind is this is all new to you. It sounds like he has had a good idea about what's been going on for a while - whether or not he had the suspicion of the specific label for a diagnosis or not. So the 2 of you are in very different processing stages.