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My biggest challenge with no vehicle is getting larger items from the thrift store or Restore. I use the bus and there isn't much I can carry, and apparently delivery across the river is $70!!!!! Not that far either.
Same here. But I don’t know about delivery charges here.
 
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Really not doing ok.
Copper levels are high - can do damage to liver, kidneys and brain.
Liver issues can make copper rise though too. Most of my liver markers are looking ok, 2 are not.
We were assume the former with me, but ultrasound is suggesting latter.
My internist was expecting a normal ultrasound, it is not. Multiple spots, one quite large. The phrase suspected metastatic is on there. Need a biopsy and MRI before anything is diagnosed.

Stuff has to be arranged with 2 hospitals for the biopsy. The normal receptionist wasn't even there today. I don't know what to do. I have no dates.
So sorry to hear that Chemgal! I hope they get everything moving along quickly!!
 

Jae

Evaluating the Experience
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My biggest challenge with no vehicle is getting larger items from the thrift store or Restore. I use the bus and there isn't much I can carry, and apparently delivery across the river is $70!!!!! Not that far either.
That doesn't sound like all that much to me.
 

Seeler

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My biggest challenge with no vehicle is getting larger items from the thrift store or Restore. I use the bus and there isn't much I can carry, and apparently delivery across the river is $70!!!!! Not that far either.
Ninjafaery, Could you arrange to have the store hold the item for a few days? Then, call a friend (ie me) and if it will fit in the car, perhaps you could arrange to have it picked up.
 

Carolla

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That doesn't sound like all that much to me.
You are not the person making the purchase - how items fit into a budget is individual. $70 is more than a day's wage for some people. So your comment, to me at least, reflects a sense of privilege.
 

BetteTheRed

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Hugs to chemgal, because you must be hella frightened.

Ninja, go looking on Facebook for a "Name of Community Being Neighbourly". Ours is called "Barrie and Area Being Neighbourly". That's where you might find a neighbour with a larger vehicle happy to help you move something for free or price of gas. I help the odd person if the request fits my schedule, etc.

Mrs. A., I like your co-workers sense of humour...
 

Mrs.Anteater

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Mrs. A., I like your co-workers sense of humour...
Oh, they are great. They showed up and said that I was going to be moved to the only bed available on Psych unit and they were ask to do a cognitive test on me. If I don’t get out of here soon, they are sending me to Long Term Care....
 

Carolla

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Oh, they are great. They showed up and said that I was going to be moved to the only bed available on Psych unit and they were ask to do a cognitive test on me. If I don’t get out of here soon, they are sending me to Long Term Care....
No fair making people laugh too much right after surgery!! They sound like a great group who care a lot about you. You're a treasure.
 

ChemGal

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My GP called today, Chemguy talked to her while I napped for some of the conversation before gradually waking up.
She called because yesterday I called to request she actually get onto the computer to see my results - she still hadn't come across the ultrasound, Chemguy let her know we had dropped off a copy this morning.

My internist had started my appointment by reading the ultrasound report. The word cancer never came up until the end of our appointment. I understood the report almost as much as he did, minus one word which is explained to me. He brushed over metastatic, I think he was hoping I wouldn't get the full picture right away. I did. When he went to print me off a copy I turned to Chemguy and said something like you know that metastatic means it's bad, right? Apparently he just heard it's bad. Chemguy never connected to the metastatic part like I did, he just figured 'spread through liver'.

Well my GP upon reading the ultrasound report know a plan immediately. I have already read that metastatic cancer rarely begins in the liver. She wants to do a whole bunch of screening - skin, breast, colon, etc. That aspect hadn't occurred to Chemguy. I lost my rock for a bit, I had to calm him down after. He's out getting a massage - one he had booked a while ago. I hope it helps him relax.
 

Northwind

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Oh man @ChemGal. Are you saying you have cancer? This is a club none of us wants to join. The word metastatic is extra scary. I hope the screening reveals answers for you. sending hugs.
 

ChemGal

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Oh man @ChemGal. Are you saying you have cancer? This is a club none of us wants to join. The word metastatic is extra scary. I hope the screening reveals answers for you. sending hugs.
I can't confirm 100%. My liver is full of masses. "highly suspicious for metastatic disease" is what the radiologist wrote and called my doctor about 2 hours after the ultrasound was done.
The test result that I picked up on was going up in 2015 - so it's been a while. I think this stuff is what triggered my HAE to be so bad.
 

ChemGal

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What's your next step @ChemGal ?
Biopsy & MRI, I am guessing biopsy comes first although no appointment for either.
I did blood work today. Mostly for bleeding stuff for the biopsy - annoying as it's no where near as detailed as what my hematologist did and were done in triplicate - all different dates. 2 cancer markers were tested, one I got results back this afternoon - negative. One won't come back for ~2 weeks.
 

Northwind

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Well first results are good news. This time of not knowing is the worst. Please keep us posted.
 

Nancy

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ChemGal….Hugs. Hope your rock has recovered enough to continue to support. Definitely a family issue/responsibility.
 

KayTheCurler

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This really sucks Chemgal and I am at a loss for words.

Sit - breathe - hope - feel our arms holding you.................
 

ChemGal

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Thanks all, I am reading even when not responding.
I'm having trouble. I'm not sleeping well but am of course still really fatigued. I'm forgetting things constantly.
Yet I feel like I am responsible for so much of my care. This was only caught because I caught it and if I had double checked all my results in the past may have caught it years earlier. I can't trust my doctors. Even with the biopsy I wasn't asked about what needed to be done, I immediately had to go hey, I need extra meds in order to have that done safely.

I feel like if I'm not on, 100% all the time as a patient my care gets mishandled. I don't know how to be on that well right now.
 
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