I’m sorry I’ve been offline. I’m adjusting to my new surroundings/ routine and I find myself dozing off not long after I turn on my device. I’m too lazy/ tired to form written sentences by the time I try. I’m pretty fatigued mentally, emotionally, and physically it’s been overwhelming - but I’m glad to not be in the hospital.Yes please let us know how you're doing.
Home support has been strange. I need minimal personal care and the staff is used to doing everything which I don’t want them doing - but then, it was put in my care plan that I require light meal prep (toast and coffee in the morning as that’s downstairs I just have a microwave and mini fridge up here and no counter), take dirty dishes down and bring up clean ones for the day, and for them to take out the garbage. That’s been a sticking point - they either don’t want to or say it’s not in their instructions. I get a shower/ bath once a week (I’ve done it myself anyway but it’s dangerous for me - so, mostly sponge baths). I told them I don’t want them washing me or even being in there I just want them to stand outside the door and then wipe the floor and make sure I don’t slip after (after I put my long tshirt/ night shirt back on) - there’s a different person everyday and today the woman didn’t even say her name before hurrying me toward the bathroom on the clock. She insisted on being in the bathroom because she said in 20 yrs none of her clients have fallen and she doesn’t want me to be her first. Anyway, the OT who told me that home support would make coffee and stand by while I did my thing, for safety, happened to call about something else and I told her - she said actually she did think it’s best if home support worker was in the bathroom with me. I don’t know. I might cancel them. I don’t like it. Things take quite a bit longer and may not be as safe but I can do it. They didn’t come for 2 days and I managed anyway. And I can ride my scooter to the coffee shop and feel normal.